Complex hereditary spastic paraplegia

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ORPHA:102013
Who is this for?
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18Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Jan 2024Incidence and Risk Factors of Ocular Complications Among Patients With Homocystinuria

King Fahad Armed Forces Hospital — NA

TrialENROLLING BY INVITATION

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Complex hereditary spastic paraplegia.

View clinical trials →

No actively recruiting trials found for Complex hereditary spastic paraplegia at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Complex hereditary spastic paraplegia community →

Specialists

18 foundView all specialists →
AM
Alisa Mo
BOSTON, MA
Specialist
1 Complex hereditary spastic paraplegia publication
AS
Afshin Saffari
Specialist
4 Complex hereditary spastic paraplegia publications
DE
Darius Ebrahimi-Fakhari
Specialist
4 Complex hereditary spastic paraplegia publications
MS
Mustafa Sahin
BOSTON, MA
Specialist
3 Complex hereditary spastic paraplegia publications
SS
Siddharth Srivastava
BOSTON, MA
Specialist
2 Complex hereditary spastic paraplegia publications
NL
Nathalie Launay
Specialist
2 Complex hereditary spastic paraplegia publications
MR
Montserrat Ruiz
Specialist
2 Complex hereditary spastic paraplegia publications
EV
Edgard Verdura
Specialist
2 Complex hereditary spastic paraplegia publications
AR
Agustí Rodríguez-Palmero
Specialist
2 Complex hereditary spastic paraplegia publications
AS
Agatha Schlüter
Specialist
2 Complex hereditary spastic paraplegia publications
AP
Aurora Pujol
Specialist
2 Complex hereditary spastic paraplegia publications
MZ
Marvin Ziegler
Specialist
2 Complex hereditary spastic paraplegia publications
MK
Melanie Kellner
TOMS RIVER, NJ
Specialist
1 Complex hereditary spastic paraplegia publication
MD
Marion Döbler-Neumann
Specialist
1 Complex hereditary spastic paraplegia publication
HJ
Hellen Jumo
LOS ANGELES, CA
Specialist
2 Complex hereditary spastic paraplegia publications
RP
Robert Maki, MD, PhD
PHILADELPHIA, PA
Specialist
PI on 8 active trials
HM
Hassan A Ahmed, MS
Jeddah
Specialist

Rare Disease Specialist

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Complex hereditary spastic paraplegia.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Complex hereditary spastic paraplegia

Disease timeline:

New trial: Incidence and Risk Factors of Ocular Complications Among Patients With Homocystinuria

Phase NA trial recruiting. Lensectomy and vitrectomy

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Complex hereditary spastic paraplegia

Which specialists treat Complex hereditary spastic paraplegia?

18 specialists and care centers treating Complex hereditary spastic paraplegia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.