Combined oxidative phosphorylation defect type 17

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ORPHA:369913OMIM:615440E88.8
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Overview

Combined oxidative phosphorylation defect type 17 (COXPD17) is an extremely rare genetic disorder that affects how cells produce energy. Inside nearly every cell in your body, tiny structures called mitochondria act as power plants, converting food into usable energy through a process called oxidative phosphorylation. In COXPD17, this energy-making process is disrupted because of a problem with a gene called ELAC2, which is needed to properly process transfer RNAs inside mitochondria. Without working transfer RNAs, the mitochondria cannot build the proteins they need to generate energy efficiently. This disease typically appears in infancy and can affect multiple organs, especially those that need a lot of energy, such as the brain, heart, and muscles. Common symptoms include poor growth, weak muscle tone (hypotonia), developmental delays, heart problems (hypertrophic cardiomyopathy), and elevated levels of lactic acid in the blood. Some children may also experience liver problems and breathing difficulties. There is currently no cure for COXPD17. Treatment is supportive and focuses on managing individual symptoms, such as heart medications for cardiomyopathy, physical therapy for muscle weakness, and nutritional support for poor growth. Because the disease is so rare, research is limited, and management is guided by experience with similar mitochondrial disorders. A team of specialists is usually needed to provide the best possible care.

Also known as:

Key symptoms:

Weak muscle tone (floppiness)Poor growth and failure to thriveDevelopmental delaysHeart muscle thickening (hypertrophic cardiomyopathy)High lactic acid levels in the bloodBreathing difficultiesLiver problemsFeeding difficultiesSeizuresIntellectual disabilityFatigue and low energyMovement problems

Inheritance

Autosomal recessive

Passed on when both parents carry the same gene change; often skips generations

Age of Onset

Infantile

Begins in infancy, roughly 1 month to 2 years old

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Combined oxidative phosphorylation defect type 17.

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No actively recruiting trials found for Combined oxidative phosphorylation defect type 17 at this time.

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No specialists are currently listed for Combined oxidative phosphorylation defect type 17.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Combined oxidative phosphorylation defect type 17.

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Community

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Latest news about Combined oxidative phosphorylation defect type 17

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.How severe is my child's condition based on the genetic findings and current symptoms?,Which organs are affected and how will they be monitored over time?,Are there any supplements or vitamins that might help support mitochondrial function?,What should I do if my child becomes sick with a fever or infection — is there a special emergency plan?,What therapies (physical, occupational, speech) would benefit my child right now?,Are there any clinical trials or research studies we could participate in?,Should other family members be tested to see if they are carriers?

Common questions about Combined oxidative phosphorylation defect type 17

What is Combined oxidative phosphorylation defect type 17?

Combined oxidative phosphorylation defect type 17 (COXPD17) is an extremely rare genetic disorder that affects how cells produce energy. Inside nearly every cell in your body, tiny structures called mitochondria act as power plants, converting food into usable energy through a process called oxidative phosphorylation. In COXPD17, this energy-making process is disrupted because of a problem with a gene called ELAC2, which is needed to properly process transfer RNAs inside mitochondria. Without working transfer RNAs, the mitochondria cannot build the proteins they need to generate energy efficie

How is Combined oxidative phosphorylation defect type 17 inherited?

Combined oxidative phosphorylation defect type 17 follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Combined oxidative phosphorylation defect type 17 typically begin?

Typical onset of Combined oxidative phosphorylation defect type 17 is infantile. Age of onset can vary across affected individuals.