Cohen-Gibson syndrome

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:659396OMIM:617561Q87.3
Who is this for?
Show terms as
10Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Cohen-Gibson syndrome.

View clinical trials →

No actively recruiting trials found for Cohen-Gibson syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Cohen-Gibson syndrome community →

Specialists

10 foundView all specialists →
CZ
Christiane Zweier
Specialist
1 Cohen-Gibson syndrome publication
AW
Andreas Winterpacht
Specialist
1 Cohen-Gibson syndrome publication
SU
Steffen Uebe
Specialist
1 Cohen-Gibson syndrome publication
CK
Cornelia Kraus
Specialist
1 Cohen-Gibson syndrome publication
CT
Christian T Thiel
Specialist
1 Cohen-Gibson syndrome publication
KH
Katalin L M L Hetzelt
Specialist
1 Cohen-Gibson syndrome publication
AE
Arif B Ekici
Specialist
1 Cohen-Gibson syndrome publication
FK
Frank Kerling
Specialist
1 Cohen-Gibson syndrome publication
CR
Christophe Rauch
RIPON, WI
Specialist
1 Cohen-Gibson syndrome publication
MW
Martin Winterholler
Specialist
1 Cohen-Gibson syndrome publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Cohen-Gibson syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Cohen-Gibson syndromeForum →

No community posts yet. Be the first to share your experience with Cohen-Gibson syndrome.

Start the conversation →

Latest news about Cohen-Gibson syndrome

No recent news articles for Cohen-Gibson syndrome.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Cohen-Gibson syndrome

Which specialists treat Cohen-Gibson syndrome?

10 specialists and care centers treating Cohen-Gibson syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.