Cogan-Reese syndrome

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:98980H21.2
Who is this for?
Show terms as
1FDA treatments8Treatment centers1Financial resources

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

Treatments

1 available

Actemra

tocilizumab· Genentech, Inc.■ Boxed Warning

indicated for the treatment of chimeric antigen receptor (CAR) T cell-induced severe or life-threatening cytokine release syndrome in adults and pediatric patients 2 years of age and older

View Details →FDA Label ↗Patient Assistance ↗

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Cogan-Reese syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Cogan-Reese syndrome community →

Specialists

View all specialists →

No specialists are currently listed for Cogan-Reese syndrome.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources
Actemra(tocilizumab)— Genentech, Inc.

Travel Grants

No travel grants are currently matched to Cogan-Reese syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Cogan-Reese syndromeForum →

No community posts yet. Be the first to share your experience with Cogan-Reese syndrome.

Start the conversation →

Latest news about Cogan-Reese syndrome

No recent news articles for Cogan-Reese syndrome.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.