Cleft lip/palate-ectodermal dysplasia syndrome in Massachusetts

1 specialist · 2 treatment centers for Cleft lip/palate-ectodermal dysplasia syndrome in Massachusetts, verified against ClinicalTrials.gov, PubMed, and the NPPES NPI registry.

Cleft lip/palate-ectodermal dysplasia syndrome (also known as Zlotogora-Ogur syndrome or Margarita Island ectodermal dysplasia) is a rare genetic disorder characterized by the combination of orofacial clefting and features of ectodermal dysplasia. This condition affects multiple body systems derived from the ectoderm, …

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Specialists are identified from ClinicalTrials.gov principal investigators, PubMed publications, and the NPI registry, then ranked through an automated scoring pipeline.

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Specialists in Massachusetts

Steven Isakoff, MD, PhD, MD PhD
Rare Disease / Clinical Research
Massachusetts General Hospital
BOSTON, MA
PI×1

Treatment centers in Massachusetts

Boston Children's Hospital Rare Disease Program ↗NORD CoE
Boston Children's Hospital
Boston, MA
Harvard/MGH UDN Clinical Site ↗NIH UDN
Massachusetts General Hospital
Boston, MA

Cleft lip/palate-ectodermal dysplasia syndrome care in other states

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Specialists in Massachusetts

Treatment centers in Massachusetts

Cleft lip/palate-ectodermal dysplasia syndrome care in other states

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