Chronic actinic dermatitis

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16Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Chronic actinic dermatitis (CAD), also known as persistent light reactivity or actinic reticuloid, is a skin condition in which the skin becomes extremely sensitive to sunlight and sometimes even artificial light. It mainly affects areas of skin that are regularly exposed to the sun, such as the face, neck, hands, and forearms. The condition causes the skin to become red, thickened, inflamed, and very itchy. In severe cases, the rash can spread to areas that are not directly exposed to light. CAD most commonly affects middle-aged and older men, though it can occur in anyone. It is thought to develop as an abnormal immune response to substances in the skin that are changed by ultraviolet (UV) light. Many people with CAD also have contact allergies to certain plants, fragrances, sunscreens, or rubber chemicals, which may play a role in triggering or worsening the condition. Treatment focuses on strict sun avoidance, protective clothing, and the use of broad-spectrum sunscreens. Topical corticosteroids and calcineurin inhibitors are commonly used to reduce inflammation. In more severe cases, doctors may prescribe immunosuppressive medications such as azathioprine, cyclosporine, or mycophenolate mofetil. Some patients improve over time, especially if triggering allergens are identified and avoided, but the condition can persist for many years and significantly affect quality of life.

Also known as:

Key symptoms:

Severe itching of sun-exposed skinRed, inflamed patches on the face, neck, and handsThickened, leathery skin in affected areasDry, scaly skinSwelling of the skin after sun exposureSkin rash that worsens with even brief sun exposureDarkening or discoloration of affected skinRash spreading to areas not directly exposed to sunlightCracking or oozing of the skin in severe casesSensitivity to artificial light sources such as fluorescent bulbs

Clinical phenotype terms (12)— hover any for plain English
Progressive hyperpigmentationHP:0007505Late onset atopic dermatitisHP:0007573Actinic keratosisHP:0025127LichenificationHP:0100725Allergic rhinitisHP:0003193
Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
May 2025Study of Remibrutinib (LOU064) Efficacy and Safety and Exploration of Its Mechanism of Action in Participants With Chronic Urticaria

Novartis Pharmaceuticals — PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Chronic actinic dermatitis.

View clinical trials →

No actively recruiting trials found for Chronic actinic dermatitis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Chronic actinic dermatitis community →

Specialists

16 foundView all specialists →
PF
Peter Foley
WORCESTER, MA
Specialist
2 Chronic actinic dermatitis publications
NL
Naiyu Lin
Specialist
2 Chronic actinic dermatitis publications
JH
Jiande Han
Specialist
2 Chronic actinic dermatitis publications
CB
Chris Baker
Specialist
2 Chronic actinic dermatitis publications
JZ
Jianbo Zhong
Specialist
2 Chronic actinic dermatitis publications
KA
Kamran Ali
Specialist
2 Chronic actinic dermatitis publications
LW
LiMing Wu
Specialist
2 Chronic actinic dermatitis publications
YT
Ying Tu
BRONX, NY
Specialist
2 Chronic actinic dermatitis publications
LH
Li He
Specialist
2 Chronic actinic dermatitis publications
AB
Anuradha Bishnoi
WEXFORD, PA
Specialist
2 Chronic actinic dermatitis publications
JF
John Ferguson
Specialist
2 Chronic actinic dermatitis publications
XC
Xinrong Chen
Specialist
1 Chronic actinic dermatitis publication
JC
Jie Chen
Specialist
1 Chronic actinic dermatitis publication
QG
Qiaozhi Gu
Specialist
1 Chronic actinic dermatitis publication
BD
Benjamin S Daniel
GREENVILLE, SC
Specialist
2 Chronic actinic dermatitis publications
AT
Ahsan Tameez-ud-din
Specialist
PI on 1 active trial2 Chronic actinic dermatitis publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Chronic actinic dermatitis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Chronic actinic dermatitis

Disease timeline:

New recruiting trial: Study of Remibrutinib (LOU064) Efficacy and Safety and Exploration of Its Mechanism of Action in Participants With Chronic Urticaria

A new clinical trial is recruiting patients for Chronic actinic dermatitis

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What specific wavelengths of light am I sensitive to, and how was this determined?,Could any of my current products, medications, or allergens be making my condition worse?,What sunscreen ingredients should I avoid, and which are safe for me?,What treatment options are available if topical creams are not enough to control my symptoms?,Are there risks associated with long-term use of immunosuppressive medications for this condition?,Is there a chance my condition will improve or resolve over time?,Should I make changes to my home or workplace lighting to reduce flare-ups?

Common questions about Chronic actinic dermatitis

What is Chronic actinic dermatitis?

Chronic actinic dermatitis (CAD), also known as persistent light reactivity or actinic reticuloid, is a skin condition in which the skin becomes extremely sensitive to sunlight and sometimes even artificial light. It mainly affects areas of skin that are regularly exposed to the sun, such as the face, neck, hands, and forearms. The condition causes the skin to become red, thickened, inflamed, and very itchy. In severe cases, the rash can spread to areas that are not directly exposed to light. CAD most commonly affects middle-aged and older men, though it can occur in anyone. It is thought to

How is Chronic actinic dermatitis inherited?

Chronic actinic dermatitis follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Chronic actinic dermatitis typically begin?

Typical onset of Chronic actinic dermatitis is adult. Age of onset can vary across affected individuals.

Which specialists treat Chronic actinic dermatitis?

16 specialists and care centers treating Chronic actinic dermatitis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.