Carotid web

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ORPHA:698260I77.3
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3Active trials17Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

AFMDCaWAtypical FMDCarotid diaphragmAtypical fibromuscular dysplasia
Orphanet ↗NORD ↗

FDA & Trial Timeline

3 events
Jan 2026Prevalence of Carotid Web in Youth

University of Ostrava

TrialRECRUITING
Sep 2024Familial Form of Carotid Web: a Doppler Ultrasound Study

University Hospital, Toulouse — NA

TrialRECRUITING
Jun 2019Carotid Web Associated With Cerebral Infarctions

University Hospital, Bordeaux

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Carotid web.

3 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

3 recruitingView all trials with filters →
N/A1 trial
Familial Form of Carotid Web: a Doppler Ultrasound Study
N/A
Actively Recruiting
PI: Claire VILLEPINTE, MD (University Hospital, Toulouse) · Sites: Toulouse · Age: 18–65 yrs
View on ClinicalTrials.gov ↗I'm interested →
Other2 trials
Prevalence of Carotid Web in Youth
Actively Recruiting
PI: David Školoudík, Prof., M.D., Ph.D. (University of Ostrava) · Sites: Ostrava, Moravskoslezský kraj · Age: 15–25 yrs
View on ClinicalTrials.gov ↗I'm interested →
Carotid Web Associated With Cerebral Infarctions
Actively Recruiting
· Sites: Bordeaux · Age: 18–99 yrs
View on ClinicalTrials.gov ↗I'm interested →

Specialists

17 foundView all specialists →
MF
Michael R Frankel
Specialist
3 Carotid web publications
DH
Diogo C Haussen
ATLANTA, GA
Specialist
4 Carotid web publications
AV
Alain Viguier
Specialist
4 Carotid web publications
NC
Nicolas Chausson
Specialist
3 Carotid web publications
NG
Nicolas Gaillard
Specialist
3 Carotid web publications
JD
Jean-Philippe Desilles
Specialist
3 Carotid web publications
MB
Marion Boulanger
Specialist
3 Carotid web publications
ER
Emmanuelle Robinet-Borgomano
Specialist
3 Carotid web publications
AL
Anne Landais
Specialist
3 Carotid web publications
BG
Benoit Guillon
Specialist
3 Carotid web publications
CD
Christian Denier
Specialist
3 Carotid web publications
QH
Quentin Holay
Specialist
3 Carotid web publications
SO
Stephane Olindo
Specialist
3 Carotid web publications
GM
Gaultier Marnat
Specialist
3 Carotid web publications
RN
Raul G Nogueira
PITTSBURGH, PA
Specialist
3 Carotid web publications
CM
Claire VILLEPINTE, MD
Specialist
PI on 2 active trials
EY
ekin EB baylam yirmibeş
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Carotid web.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Carotid web

1 articles
ResearchPUBMEDMar 28, 2026
Rare and emerging arterial diseases of the supra-aortic trunks: Diagnostic and therapeutic insights.
This article discusses rare diseases that affect the major blood vessels in the neck and upper chest (called supra-aortic trunks). While most blockages in these…
See all news about Carotid web →

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Carotid web

Are there clinical trials for Carotid web?

Yes — 3 recruiting clinical trials are currently listed for Carotid web on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Carotid web?

17 specialists and care centers treating Carotid web are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.