Burning mouth syndrome

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4Active trials43Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Burning mouth syndrome (BMS), also known as glossodynia, stomatodynia, or oral dysesthesia, is a condition that causes a burning, scalding, or tingling sensation in the mouth without any visible sores or obvious cause. The burning feeling most commonly affects the tongue, but it can also involve the lips, gums, roof of the mouth, throat, or the entire mouth. The pain can range from mild to severe and may come and go or be constant throughout the day. Many people describe the sensation as feeling like they scalded their mouth with a hot drink. Some also experience dry mouth, altered taste (such as a metallic or bitter flavor), or numbness. BMS is divided into two types. Primary BMS has no identifiable underlying cause and may be related to problems with the nerves that control pain and taste. Secondary BMS can be triggered by other conditions such as dry mouth, nutritional deficiencies (especially B vitamins, iron, or zinc), oral infections like thrush, acid reflux, hormonal changes (particularly during menopause), allergies to dental materials, certain medications, or psychological factors like anxiety and depression. The condition predominantly affects middle-aged and older adults, especially postmenopausal women. Treatment depends on the underlying cause when one can be found. Options include saliva replacement products, certain antidepressants, anti-anxiety medications, anticonvulsants like clonazepam, alpha-lipoic acid supplements, and cognitive behavioral therapy. While BMS can be persistent and frustrating, it is not dangerous and does not lead to serious complications. Many patients find relief with proper management, though the condition may take time to improve.

Also known as:

Key symptoms:

Burning or scalding sensation on the tongueBurning feeling on the lips, gums, or roof of the mouthDry mouth despite normal saliva productionMetallic or bitter taste in the mouthLoss of taste or altered tasteTingling or numbness in the mouthSoreness or pain throughout the mouthIncreased thirstPain that worsens throughout the dayDifficulty eating spicy or acidic foodsFeeling of mouth drynessPain that may temporarily improve while eating or drinking

Clinical phenotype terms (17)— hover any for plain English
ParageusiaHP:0031249Impaired temperature sensationHP:0010829Abnormal fifth cranial nerve morphologyHP:0010824Abnormality of somatosensory evoked potentialsHP:0007377Burning mouthHP:0032143Abnormality of taste sensationHP:0000223Tongue painHP:0030811Abnormality of the gingivaHP:0000168Strawberry tongueHP:0031042Smooth tongueHP:0010298
Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

9 events
May 2026A Solid Tumor Study for Long Term Treatment of Cancer Patients Who Participated in Adagrasib Studies

Mirati Therapeutics Inc. — PHASE2

TrialNOT YET RECRUITING
Jan 2026Burning Mouth Syndrome: Effects of Occlusal Splint Therapy

Malmö University — NA

TrialNOT YET RECRUITING
Jun 2025Burning Mouth Syndrome: Symptoms and Management

University of Massachusetts, Amherst — EARLY_PHASE1

TrialRECRUITING
Apr 2025Photobiomodulation Therapy vs. Alpha-Lipoic Acid in Burning Mouth Syndrome Treatment

Lu Jiang — NA

TrialACTIVE NOT RECRUITING
Nov 2023Effect of Treatments on Pain and Quality of Life in Individual With Burning Mouth Syndrome

Federal University of Minas Gerais — PHASE4

TrialRECRUITING
Mar 2023Reducing Patient Memory Recall in the Burning Mouth Patient Population

University of Pennsylvania

TrialRECRUITING
Aug 2019Pan Tumor Rollover Study

Bristol-Myers Squibb — PHASE2

TrialRECRUITING
Jul 2019Phase II Study of Short Course FOLFOX Chemotherapy With Either Nivolumab or Nivolumab + Radiation in the First Line Treatment of Metastatic or Unresectable Gastroesophageal Cancers (BMS Protocol CA209-76L)

Weill Medical College of Cornell University — PHASE2

TrialACTIVE NOT RECRUITING
Jun 2019Encorafenib, Cetuximab, and Nivolumab in Treating Patients With Microsatellite Stable, BRAFV600E Mutated Unresectable or Metastatic Colorectal Cancer

M.D. Anderson Cancer Center — PHASE1, PHASE2

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Burning mouth syndrome.

4 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

4 recruitingView all trials with filters →
Phase 41 trial
Effect of Treatments on Pain and Quality of Life in Individual With Burning Mouth Syndrome
Phase 4
Actively Recruiting
PI: Fernando O Costa, PhD (Federal University of Minas Gerais) · Sites: Belo Horizonte, Minas Gerais · Age: 1870 yrs
N/A1 trial
Photobiomodulation Therapy vs. Alpha-Lipoic Acid in Burning Mouth Syndrome Treatment
N/A
Active
PI: Lu Jiang, MD (Sichuan University) · Sites: Chengdu, Sichuan · Age: 1875 yrs
Other1 trial
Reducing Patient Memory Recall in the Burning Mouth Patient Population
Actively Recruiting
PI: Eugene Ko, DDS (Penn Dental School of Medicine, Center for Clinica) · Sites: Philadelphia, Pennsylvania · Age: 1899 yrs

Specialists

Showing 25 of 43View all specialists →
LP
Lopez-Jornet Pia, MD DDS PhD
Specialist
PI on 1 active trial
LM
Lu Jiang, MD
CHICAGO, IL
Specialist
PI on 1 active trial1 Burning mouth syndrome publication
LJ
Lu Jiang
CHICAGO, IL
Specialist
PI on 1 active trial200 Burning mouth syndrome publications
TP
tomasz konopka, prof
CEDAR PARK, TX
Specialist
PI on 1 active trial
RP
Rosa María López-Pintor, PhD
Specialist
PI on 1 active trial
SP
Silvia RDT Siqueira, Professor
Specialist
PI on 1 active trial
FP
Fernando O Costa, PhD
Specialist
PI on 1 active trial
ED
Eugene Ko, DDS
Specialist
PI on 1 active trial
NP
Nita Chainani-Wu, DMD, MS, PhD
Specialist
PI on 1 active trial
PP
Patrícia Oliveira, PhD
Specialist
PI on 1 active trial
AB
Austin Belknap
ORLANDO, FL
Specialist
PI on 1 active trial
SD
Sol Jr. Silverman, MA, DDS
Specialist
PI on 1 active trial
FM
Francesco Di Mario
Specialist
2 Burning mouth syndrome publications
FC
Federica Canfora
Specialist
2 Burning mouth syndrome publications
MM
Michele Davide Mignogna
Specialist
2 Burning mouth syndrome publications
CL
Chenghui Lu
Specialist
2 Burning mouth syndrome publications
DA
Daniela Adamo
CARPENTERSVILLE, IL
Specialist
4 Burning mouth syndrome publications
GS
Gianrico Spagnuolo
Specialist
2 Burning mouth syndrome publications
MR
Michele Russo
Specialist
2 Burning mouth syndrome publications
PC
Pellegrino Crafa
Specialist
2 Burning mouth syndrome publications
LF
Lorella Franzoni
Specialist
2 Burning mouth syndrome publications
GT
Guoyao Tang
Specialist
2 Burning mouth syndrome publications
HT
Huann Lan Tan
Specialist
1 Burning mouth syndrome publication
QD
Qing Du
CHICAGO, IL
Specialist
2 Burning mouth syndrome publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Burning mouth syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Burning mouth syndrome

Disease timeline:

New recruiting trial: Pan Tumor Rollover Study

A new clinical trial is recruiting patients for Burning mouth syndrome

New recruiting trial: Burning Mouth Syndrome: Symptoms and Management

A new clinical trial is recruiting patients for Burning mouth syndrome

New recruiting trial: Effect of Treatments on Pain and Quality of Life in Individual With Burning Mouth Syndrome

A new clinical trial is recruiting patients for Burning mouth syndrome

New recruiting trial: Reducing Patient Memory Recall in the Burning Mouth Patient Population

A new clinical trial is recruiting patients for Burning mouth syndrome

New trial: National Exhaustive Cohort of Hereditary Stomatocytoses and Other Channelopathies Affecting the Red

Phase NA trial recruiting.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Could my burning mouth symptoms be caused by an underlying condition like a nutritional deficiency, infection, or hormonal change?,What tests do you recommend to rule out secondary causes of my symptoms?,What treatment options are available, and what are the potential side effects?,How long should I try a treatment before we know if it is working?,Are there any foods, drinks, or oral care products I should avoid?,Should I see any other specialists, such as a neurologist or oral medicine doctor?,Can you recommend any strategies for managing the emotional impact of chronic mouth pain?

Common questions about Burning mouth syndrome

What is Burning mouth syndrome?

Burning mouth syndrome (BMS), also known as glossodynia, stomatodynia, or oral dysesthesia, is a condition that causes a burning, scalding, or tingling sensation in the mouth without any visible sores or obvious cause. The burning feeling most commonly affects the tongue, but it can also involve the lips, gums, roof of the mouth, throat, or the entire mouth. The pain can range from mild to severe and may come and go or be constant throughout the day. Many people describe the sensation as feeling like they scalded their mouth with a hot drink. Some also experience dry mouth, altered taste (such

How is Burning mouth syndrome inherited?

Burning mouth syndrome follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Burning mouth syndrome typically begin?

Typical onset of Burning mouth syndrome is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Burning mouth syndrome?

Yes — 4 recruiting clinical trials are currently listed for Burning mouth syndrome on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Burning mouth syndrome?

25 specialists and care centers treating Burning mouth syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.