Bipartite talus

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ORPHA:364198Q66.8
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11Specialists8Treatment centers

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Overview

Bipartite talus is an extremely rare congenital bone condition affecting the talus, which is one of the key bones in the ankle. In this condition, the talus bone is divided into two separate pieces instead of being one solid bone. This happens during development before birth, when the parts of the talus that normally fuse together fail to do so. The talus plays a critical role in the ankle joint, connecting the leg bones to the foot and allowing the ankle to move up and down. When the talus is split into two parts, it can cause ankle pain, stiffness, reduced range of motion, and difficulty walking or bearing weight. Some people with bipartite talus may not have any symptoms at all and only discover the condition incidentally when getting an X-ray or other imaging for an unrelated reason. In symptomatic cases, the condition may be confused with an ankle fracture or other ankle problems. Treatment depends on whether the condition causes symptoms. For people without pain or functional problems, no treatment may be needed. For those with symptoms, conservative approaches such as rest, physical therapy, supportive footwear, or bracing may help. In more severe or persistent cases, surgery may be considered to either fuse the two pieces together or remove the problematic fragment. Because this condition is so rare, treatment is often individualized based on the patient's specific anatomy and symptoms.

Key symptoms:

Ankle painStiffness in the ankle jointReduced ankle movementDifficulty walkingSwelling around the anklePain with weight-bearing activitiesLimpingFeeling of instability in the anklePain that worsens with physical activity

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Bipartite talus.

View clinical trials →

No actively recruiting trials found for Bipartite talus at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Bipartite talus community →

Specialists

11 foundView all specialists →
HP
Hao Peng
DALTON, GA
Specialist
1 Bipartite talus publication
XF
Xiaoyong Fu
Specialist
1 Bipartite talus publication
AT
Adrian Torres
Specialist
1 Bipartite talus publication
XX
Xianmei Xiong
Specialist
1 Bipartite talus publication
MC
Meng Chen
Specialist
1 Bipartite talus publication
GL
Guojie Lin
Specialist
1 Bipartite talus publication
QY
Qinmeng Yang
Specialist
1 Bipartite talus publication
CP
Changqing Pan
Specialist
1 Bipartite talus publication
WC
Weijian Chen
Specialist
1 Bipartite talus publication
ZY
Zhong Yang
Specialist
1 Bipartite talus publication
MP
Megan Paulus
EAST SETAUKET, NY
Specialist
1 Bipartite talus publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Bipartite talus.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Bipartite talus

No recent news articles for Bipartite talus.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Is my bipartite talus likely to cause problems, or can it be safely monitored?,What imaging studies do I need to fully evaluate the condition?,Are there specific activities I should avoid to prevent worsening symptoms?,Would physical therapy or orthotics help in my case?,At what point should surgery be considered, and what surgical options are available?,Could this condition lead to arthritis in my ankle over time?,Is there any chance this condition is related to other bone or joint problems?

Common questions about Bipartite talus

What is Bipartite talus?

Bipartite talus is an extremely rare congenital bone condition affecting the talus, which is one of the key bones in the ankle. In this condition, the talus bone is divided into two separate pieces instead of being one solid bone. This happens during development before birth, when the parts of the talus that normally fuse together fail to do so. The talus plays a critical role in the ankle joint, connecting the leg bones to the foot and allowing the ankle to move up and down. When the talus is split into two parts, it can cause ankle pain, stiffness, reduced range of motion, and difficulty wal

How is Bipartite talus inherited?

Bipartite talus follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

Which specialists treat Bipartite talus?

11 specialists and care centers treating Bipartite talus are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.