Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency

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ORPHA:363432OMIM:616204G11.1
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Overview

Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency is a very rare inherited brain disorder that affects the cerebellum, the part of the brain responsible for coordinating movement and balance. It is caused by changes (mutations) in the GRID2 gene, which provides instructions for making a protein called glutamate receptor delta-2. This protein plays a key role in how brain cells in the cerebellum communicate with each other and develop properly. When this protein is missing or not working correctly, the cerebellum does not function as it should. Children with this condition typically show signs early in life, including delayed motor milestones such as sitting and walking, unsteady gait (ataxia), poor coordination, and sometimes involuntary eye movements (nystagmus). Some children may also have difficulties with speech and, in some cases, mild intellectual disability. Brain imaging often reveals that the cerebellum is smaller than normal, a finding called cerebellar atrophy or hypoplasia. There is currently no cure for this condition. Treatment focuses on managing symptoms and supporting development. Physical therapy, occupational therapy, and speech therapy are the main approaches used to help children improve their motor skills, coordination, and communication. The condition is non-progressive or very slowly progressive in many cases, meaning symptoms may stabilize over time, though challenges with balance and coordination typically persist throughout life.

Also known as:

Key symptoms:

Unsteady walking and poor balance (ataxia)Delayed motor milestones such as sitting and walkingInvoluntary eye movements (nystagmus)Poor coordination of hand and arm movementsSlurred or slow speechLow muscle tone (floppiness) in infancyDifficulty with fine motor tasks like writing or buttoning clothesTremor or shaking during purposeful movementsSmaller-than-normal cerebellum seen on brain scansMild intellectual disability in some casesDifficulty with eye tracking and smooth eye movements

Clinical phenotype terms (11)— hover any for plain English
Inheritance

Autosomal recessive

Passed on when both parents carry the same gene change; often skips generations

Age of Onset

Infantile

Begins in infancy, roughly 1 month to 2 years old

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency.

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No specialists are currently listed for Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency.

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Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

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Questions for your doctor

Bring these to your next appointment

  • Q1.How severe is my child's cerebellar involvement based on the MRI findings?,What specific therapies do you recommend, and how often should they occur?,Is this condition expected to stay stable or could it worsen over time?,Are there any clinical trials or research studies my child could participate in?,What school accommodations should we request to support my child's learning?,Should other family members be tested for carrier status?,Are there any other specialists we should see regularly?

Common questions about Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency

What is Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency?

Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency is a very rare inherited brain disorder that affects the cerebellum, the part of the brain responsible for coordinating movement and balance. It is caused by changes (mutations) in the GRID2 gene, which provides instructions for making a protein called glutamate receptor delta-2. This protein plays a key role in how brain cells in the cerebellum communicate with each other and develop properly. When this protein is missing or not working correctly, the cerebellum does not function as it should. Children with this conditi

How is Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency inherited?

Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency typically begin?

Typical onset of Autosomal recessive congenital cerebellar ataxia due to GRID2 deficiency is infantile. Age of onset can vary across affected individuals.