Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency

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ORPHA:444463OMIM:619220D89.8
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4Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency (sometimes called TPP2-related immunodeficiency) is a very rare inherited disease caused by changes in the TPP2 gene. This gene provides instructions for making an enzyme called tripeptidyl peptidase 2, which helps the immune system work properly and keeps blood cells healthy. When this enzyme is missing or does not work well, the immune system becomes confused and starts attacking the body's own red blood cells and platelets — the tiny cells that help blood clot. As a result, people with this condition develop two main blood problems: autoimmune hemolytic anemia (where red blood cells are destroyed too quickly, causing tiredness and paleness) and autoimmune thrombocytopenia (where platelets are destroyed, leading to easy bruising and bleeding). On top of this, the immune system is weakened overall, making it harder to fight off infections. This combination of problems — attacking itself while also being too weak to fight outside threats — is what makes this disease so challenging. Treatment focuses on calming the overactive immune response using medicines like steroids and other immune-suppressing drugs, and on preventing and treating infections. In some cases, a bone marrow transplant (also called a stem cell transplant) may be considered as a more lasting solution. Because this disease is so rare, treatment is highly individualized and managed by a team of specialists.

Also known as:

Key symptoms:

Extreme tiredness and low energy due to anemiaPale or yellowish skinEasy bruisingUnusual or prolonged bleeding from small cutsFrequent or severe infectionsEnlarged spleenEnlarged lymph nodesDark or tea-colored urineRapid or irregular heartbeatShortness of breathFever that keeps coming back

Clinical phenotype terms (14)— hover any for plain English
Autoimmune hemolytic anemiaHP:0001890Autoimmune thrombocytopeniaHP:0001973Systemic lupus erythematosusHP:0002725Moderate global developmental delayHP:0011343Respiratory tract infectionHP:0011947
Inheritance

Autosomal recessive

Passed on when both parents carry the same gene change; often skips generations

Age of Onset

Childhood

Begins in childhood, roughly ages 1 to 12

Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

7 events
Jan 2026iPACK Block vs. Periarticular Infiltration for TKA Pain Control

Turgutlu State Hospital — NA

TrialNOT YET RECRUITING
Dec 2024Conventional Partial Pancreatoduodenectomy Versus an Extended Pancreatoduodenectomy for Pancreatic Head Cancers

First Affiliated Hospital Xi'an Jiaotong University — NA

TrialNOT YET RECRUITING
Dec 2023Testing the Pain Clinical Practice Guideline

University of Maryland, Baltimore — PHASE2

TrialRECRUITING
Oct 2022Artificial Intelligence in New Cardiac MR Markers for Congenital Heart Disease

Sahlgrenska University Hospital — NA

TrialENROLLING BY INVITATION
Sep 2019Communication Memory of Cancer Diagnosis Within the Pediatric Triangle

Meyer Children's Hospital IRCCS

TrialACTIVE NOT RECRUITING
May 2018Response Assessment in SB CD

Washington University School of Medicine

TrialACTIVE NOT RECRUITING
Dec 2015Pathogenetic Basis of Aortopathy and Aortic Valve Disease

Yale University — NA

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency.

View clinical trials →

No actively recruiting trials found for Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency community →

Specialists

4 foundView all specialists →
BM
Benjamin Landis, MD
Atlanta, Georgia
Specialist

Rare Disease Specialist

PI on 1 active trial
SL
Sarah M Abdelmohsen, Lecturer
Specialist
PI on 2 active trials1 Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency publication
RM
Robert R Kempainen, MD
MINNEAPOLIS, MN
Specialist
PI on 2 active trials
CP
Charlotte de Lange, MD, Assoc. Prof
Gothenburg, Gothenburg
Specialist

Rare Disease Specialist

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency

Disease timeline:

New recruiting trial: Testing the Pain Clinical Practice Guideline

A new clinical trial is recruiting patients for Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency

New trial: Pathogenetic Basis of Aortopathy and Aortic Valve Disease

Phase NA trial recruiting.

New trial: Artificial Intelligence in New Cardiac MR Markers for Congenital Heart Disease

Phase NA trial recruiting. Valvuloplasty,

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What specific changes were found in the TPP2 gene, and what do they mean for my child's health?,What is the best treatment plan for my child right now, and how will we know if it is working?,Is a stem cell transplant an option for my child, and what are the risks and benefits?,How do we reduce the risk of serious infections, and what vaccines are safe to give?,What warning signs should make me take my child to the emergency room immediately?,Are there any clinical trials or research studies we should consider?,Should other family members be tested for this gene change?

Common questions about Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency

What is Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency?

Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency (sometimes called TPP2-related immunodeficiency) is a very rare inherited disease caused by changes in the TPP2 gene. This gene provides instructions for making an enzyme called tripeptidyl peptidase 2, which helps the immune system work properly and keeps blood cells healthy. When this enzyme is missing or does not work well, the immune system becomes confused and starts attacking the body's own red blood cells and platelets — the tiny cells that help blood clot. As a result, peop

How is Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency inherited?

Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency typically begin?

Typical onset of Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency is childhood. Age of onset can vary across affected individuals.

Which specialists treat Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency?

4 specialists and care centers treating Autoimmune hemolytic anemia-autoimmune thrombocytopenia-primary immunodeficiency syndrome due to TPP2 deficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.