Atrial septal defect, sinus venosus type

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ORPHA:99105Q21.1
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1Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Left-to-right shuntHP:0012382Anomalous pulmonary venous returnHP:0010772Cardiac conduction abnormalityHP:0031546Paradoxical splitting of the second heart soundHP:0031663Systolic heart murmurHP:0031664Atrial arrhythmiaHP:0001692Atrial flutterHP:0004749Supraventricular tachycardiaHP:0004755Atrial fibrillationHP:0005110Supraventricular arrhythmiaHP:0005115Right ventricular dilatationHP:0005133Premature atrial contractionsHP:0006699Automatic atrial tachycardiaHP:0011700
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
May 2023OPTImal Treatment of Sinus VENOSUS Defect

Centre Chirurgical Marie Lannelongue — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Atrial septal defect, sinus venosus type.

View clinical trials →

No actively recruiting trials found for Atrial septal defect, sinus venosus type at this time.

New trials open frequently. Follow this disease to get notified.

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Specialists

1 foundView all specialists →
SH
Sebastien HASCOËT
Bordeaux
Specialist

Rare Disease Specialist

PI on 1 active trial111 Atrial septal defect, sinus venosus type publications

Treatment Centers

8 centers
⚗️ Trial Site

Hospices Civils de Lyon

📍 Bron

👤 Jerome Honnorat, Pr

👤 Sebastien HASCOËT

⚗️ Trial Site

CHU bordeaux

📍 Bordeau

👤 Léo RAZAKAMAMANTSOA

👤 Sebastien HASCOËT

⚗️ Trial Site

CHU Nantes

📍 Nantes

👤 Sebastien HASCOËT

⚗️ Trial Site

CHU Lille

📍 Lille

👤 Sebastien HASCOËT

⚗️ Trial Site

CHU Toulouse

📍 Toulouse

👤 Léo RAZAKAMAMANTSOA

👤 Sebastien HASCOËT

⚗️ Trial Site

CHU Grenoble

📍 Grenoble

👤 Sebastien HASCOËT

👤 Julien Rossignol, Dr

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

Travel Grants

No travel grants are currently matched to Atrial septal defect, sinus venosus type.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Atrial septal defect, sinus venosus type

Disease timeline:

New trial: OPTImal Treatment of Sinus VENOSUS Defect

Phase NA trial recruiting. OPTIMUS covered stent

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

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Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Atrial septal defect, sinus venosus type

Which specialists treat Atrial septal defect, sinus venosus type?

1 specialists and care centers treating Atrial septal defect, sinus venosus type are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.