Overview
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
1 eventWake Forest University Health Sciences
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
1 availableEpogen
Reduction of allogeneic red blood cell (RBC) transfusions in patients undergoing elective, noncardiac, nonvascular surgery
Clinical Trials
View all trials with filters →No actively recruiting trials found for Alpha-heavy chain disease at this time.
New trials open frequently. Follow this disease to get notified.
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
1 resourcesTravel Grants
No travel grants are currently matched to Alpha-heavy chain disease.
Community
No community posts yet. Be the first to share your experience with Alpha-heavy chain disease.
Start the conversation →Latest news about Alpha-heavy chain disease
Disease timeline:
New recruiting trial: Lifestyle Intervention of Food and Exercise for Lymphoma Survivors
A new clinical trial is recruiting patients for Alpha-heavy chain disease
New recruiting trial: Assessing Benefits and Harms of Cannabis/Cannabinoid Use Among Cancer Patients Treated in Community Oncology Clinics
A new clinical trial is recruiting patients for Alpha-heavy chain disease
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Alpha-heavy chain disease
Which specialists treat Alpha-heavy chain disease?
14 specialists and care centers treating Alpha-heavy chain disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Alpha-heavy chain disease?
1 patient support program are currently tracked on UniteRare for Alpha-heavy chain disease. See the treatments and support programs sections for copay assistance, eligibility, and contact details.