Alobar holoprosencephaly

Last reviewed

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ORPHA:93925OMIM:157170Q04.2
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15Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

Solitary median maxillary central incisorHP:0006315CyclopiaHP:0009914Single narisHP:0009932Gastrostomy tube feeding in infancyHP:0011471Central hypothyroidismHP:0011787Abnormal gastrointestinal tract morphologyHP:0012718ProboscisHP:0012806Abnormal heart rate variabilityHP:0031860Abnormality of limbsHP:0040064
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Alobar holoprosencephaly.

View clinical trials →

No actively recruiting trials found for Alobar holoprosencephaly at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Alobar holoprosencephaly community →

Specialists

15 foundView all specialists →
MV
Marissa Vawter-Lee
CINCINNATI, OH
Specialist
1 Alobar holoprosencephaly publication
HE
Hunaydah Elfarawi
DUARTE, CA
Specialist
1 Alobar holoprosencephaly publication
LT
Leandra Tolusso
CINCINNATI, OH
Specialist
1 Alobar holoprosencephaly publication
MM
Michelle L McGowan
Specialist
1 Alobar holoprosencephaly publication
DC
DonnaMaria Cortezzo
HARTFORD, CT
Specialist
1 Alobar holoprosencephaly publication
WN
Wael Nakawa
Specialist
1 Alobar holoprosencephaly publication
SA
Sandy Alkhalil
Specialist
1 Alobar holoprosencephaly publication
NM
Nafiza Martini
Specialist
1 Alobar holoprosencephaly publication
MK
Michael Kayuza
Specialist
1 Alobar holoprosencephaly publication
MA
Mehmet Atalar
Specialist
1 Alobar holoprosencephaly publication
IA
Ibukun John Ariyo
Specialist
1 Alobar holoprosencephaly publication
DM
Deborah N Mchaile
Specialist
1 Alobar holoprosencephaly publication
MM
Marco Magwizi
Specialist
1 Alobar holoprosencephaly publication
PM
Phillip Mrindoko
Specialist
1 Alobar holoprosencephaly publication
IA
Ieman Alawad
Specialist
1 Alobar holoprosencephaly publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Alobar holoprosencephaly.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Alobar holoprosencephaly

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Alobar holoprosencephaly

Which specialists treat Alobar holoprosencephaly?

15 specialists and care centers treating Alobar holoprosencephaly are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.