Aggressive periodontitis

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ORPHA:447740D71
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3Active trials68Specialists8Treatment centers

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Overview

Aggressive periodontitis (also sometimes called juvenile periodontitis or early-onset periodontitis) is a serious gum disease that destroys the bone and tissue holding your teeth in place. Unlike common gum disease, it progresses very quickly and often affects young people — including teenagers and young adults — who may otherwise appear healthy. The disease is linked to problems with how the immune system fights bacteria in the mouth, particularly a bacterium called Aggregatibacter actinomycetemcomitans. In many cases, it is connected to defects in white blood cells called neutrophils, which are the body's first line of defense against infection. This is why aggressive periodontitis is classified under immune system disorders (ICD-10: D71). The main signs include rapid loss of the bone around teeth, loose teeth, deep pockets between the gums and teeth, and sometimes tooth loss at a young age. Some people have a localized form affecting mainly the first molars and front teeth, while others have a generalized form affecting most of the mouth. Pain is not always present, which can delay diagnosis. Treatment focuses on controlling the bacterial infection through deep cleaning procedures, antibiotics (such as metronidazole and amoxicillin), and in some cases surgery. Regular follow-up with a periodontist is essential. While treatment can slow or stop the disease, damage already done to bone and tissue is often permanent. Early diagnosis is key to preserving teeth and preventing further bone loss.

Also known as:

Key symptoms:

Loose or shifting teeth, especially in young peopleTeeth that feel like they are moving or spreading apartDeep pockets or gaps between the gums and teethGums that bleed easily when brushing or flossingReceding gums that make teeth look longerRapid bone loss around teeth visible on dental X-raysBad breath that does not go awayTooth loss at a young ageSwollen or red gumsSensitivity in teeth due to exposed roots

Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Juvenile

Begins in the teen years

Orphanet ↗NORD ↗

FDA & Trial Timeline

4 events
Dec 2025Single-cell and Spatial Transcriptomic Profiling of Gingival Tissues in Aggressive and Chronic Periodontitis: Deciphering Cellular Heterogeneity and Inflammatory Microenvironment Features

Second Affiliated Hospital, School of Medicine, Zhejiang University

TrialRECRUITING
Nov 2023Patterns and Glycaemic Endpoints for Diagnosing Gestational Diabetes

Portsmouth Hospitals NHS Trust

TrialACTIVE NOT RECRUITING
Nov 2021The Effect of Leukocyte and Platelet-rich Fibrin With Antimicrobial Photodynamic Therapy in Aggressive Periodontitis

Kafrelsheikh University — NA

TrialRECRUITING
May 2015B Cell Functions in Periodontitis

University Hospital, Brest

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Aggressive periodontitis.

3 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

3 recruitingView all trials with filters →
N/A1 trial
The Effect of Leukocyte and Platelet-rich Fibrin With Antimicrobial Photodynamic Therapy in Aggressive Periodontitis
N/A
Actively Recruiting
PI: Dalia R Issa, PhD (Kafrelsheikh University) · Sites: Kafr ash Shaykh · Age: 1840 yrs
Other2 trials
B Cell Functions in Periodontitis
Actively Recruiting
PI: ALARD Jean-Eric (University Hospital of Brest) · Sites: Brest · Age: 1875 yrs
Single-cell and Spatial Transcriptomic Profiling of Gingival Tissues in Aggressive and Chronic Periodontitis: Deciphering Cellular Heterogeneity and Inflammatory Microenvironment Features
Actively Recruiting
· Sites: Hangzhou, Zhejiang · Age: 2040 yrs

Specialists

Showing 25 of 68View all specialists →
AP
Ahmet C Talmac, PhD
Specialist
PI on 1 active trial
HP
Hasan Acar, Phd
Specialist
PI on 1 active trial
VP
Vasfiye B Ucar, Phd
Specialist
PI on 1 active trial
MP
Mauro P Santamaria, DDS, PhD
Specialist
PI on 4 active trials
BD
Basak Dogan, Prof. Dr.
DALLAS, TX
Specialist
PI on 1 active trial
NP
Nilgun O Alptekin, Prof.
Specialist
PI on 1 active trial
RM
Rajashree Dasari, MDS
Specialist
PI on 1 active trial
DD
Dilek Mamaklioglu, Dr.
Specialist
PI on 1 active trial
ND
Nilgun O Alptekin, Phd, DDS
Specialist
PI on 1 active trial
SP
Severine VINCENT, PH
Specialist
PI on 1 active trial
SL
Sarah M Elkot, Lecturer
Specialist
PI on 2 active trials1 Aggressive periodontitis publication
YB
Yasmine Mansour, B.D.Sc
Specialist
PI on 1 active trial
LG
Liu guojing
Specialist
PI on 1 active trial
SD
Sadiye Gunpinar, Phd, DDS
Specialist
PI on 1 active trial
EM
Engy Ahmed, M.D.
Specialist
PI on 1 active trial
SE
Samir Erraji
Specialist
1 Aggressive periodontitis publication
AB
Amal Bouziane
Specialist
1 Aggressive periodontitis publication
LL
Leila Lakhdar
Specialist
1 Aggressive periodontitis publication
JS
Jørgen Slots
Specialist
2 Aggressive periodontitis publications
TA
Toshihiro Ansai
Specialist
1 Aggressive periodontitis publication
QZ
Qiang Zhang
MOLINE, IL
Specialist
2 Aggressive periodontitis publications
AY
Akihiro Yoshida
Specialist
1 Aggressive periodontitis publication
MR
Meryem Rhissassi
Specialist
1 Aggressive periodontitis publication
HM
Hideo Miyazaki
Specialist
1 Aggressive periodontitis publication
MI
Masanori Iwasaki
Specialist
1 Aggressive periodontitis publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Aggressive periodontitis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Aggressive periodontitis

Disease timeline:

New recruiting trial: The Effect of Leukocyte and Platelet-rich Fibrin With Antimicrobial Photodynamic Therapy in Aggressive Periodontitis

A new clinical trial is recruiting patients for Aggressive periodontitis

New recruiting trial: A Study to Evaluate the Efficacy and Safety of Bimekizumab in Study Participants With Palmoplantar Pustulosis

A new clinical trial is recruiting patients for Aggressive periodontitis

New recruiting trial: B Cell Functions in Periodontitis

A new clinical trial is recruiting patients for Aggressive periodontitis

New recruiting trial: Single-cell and Spatial Transcriptomic Profiling of Gingival Tissues in Aggressive and Chronic Periodontitis: Deciphering Cellular Heterogeneity and Inflammatory Microenvironment Features

A new clinical trial is recruiting patients for Aggressive periodontitis

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.How advanced is my bone loss, and which teeth are most at risk?,Should I be tested for an underlying immune system problem that might be causing this?,Is the combination antibiotic treatment (amoxicillin and metronidazole) right for my case?,Do other members of my family need to be checked for this condition?,How often do I need maintenance visits, and what happens if I miss them?,Is bone grafting or surgery an option for me, and would it help?,Are there any new treatments or clinical trials I should know about?

Common questions about Aggressive periodontitis

What is Aggressive periodontitis?

Aggressive periodontitis (also sometimes called juvenile periodontitis or early-onset periodontitis) is a serious gum disease that destroys the bone and tissue holding your teeth in place. Unlike common gum disease, it progresses very quickly and often affects young people — including teenagers and young adults — who may otherwise appear healthy. The disease is linked to problems with how the immune system fights bacteria in the mouth, particularly a bacterium called Aggregatibacter actinomycetemcomitans. In many cases, it is connected to defects in white blood cells called neutrophils, which

How is Aggressive periodontitis inherited?

Aggressive periodontitis follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Aggressive periodontitis typically begin?

Typical onset of Aggressive periodontitis is juvenile. Age of onset can vary across affected individuals.

Are there clinical trials for Aggressive periodontitis?

Yes — 3 recruiting clinical trials are currently listed for Aggressive periodontitis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Aggressive periodontitis?

25 specialists and care centers treating Aggressive periodontitis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.