Adult-onset foveomacular vitelliform dystrophy

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ORPHA:99000OMIM:153840H35.5
Who is this for?
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18Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Chorioretinal scalloped atrophyHP:0001139Vitelliform macular lesionHP:0007677Retinal nonattachmentHP:0007899
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Adult-onset foveomacular vitelliform dystrophy.

View clinical trials →

No actively recruiting trials found for Adult-onset foveomacular vitelliform dystrophy at this time.

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Search ClinicalTrials.gov ↗Join the Adult-onset foveomacular vitelliform dystrophy community →

Specialists

18 foundView all specialists →
LT
Liran Tiosano
Specialist
3 Adult-onset foveomacular vitelliform dystrophy publications
IC
Itay Chowers
Specialist
3 Adult-onset foveomacular vitelliform dystrophy publications
TL
Terry Lee
Specialist
2 Adult-onset foveomacular vitelliform dystrophy publications
KS
Kubra Sarici
MACON, GA
Specialist
2 Adult-onset foveomacular vitelliform dystrophy publications
MH
Majda Hadziahmetovic
DURHAM, NC
Specialist
2 Adult-onset foveomacular vitelliform dystrophy publications
YS
Yahel Shwartz
Specialist
2 Adult-onset foveomacular vitelliform dystrophy publications
OS
Or Shmueli
Specialist
2 Adult-onset foveomacular vitelliform dystrophy publications
GM
Goldis Malek
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
SJ
Shlomit Jaskoll
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
AK
Adi Kramer
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
SE
Sarah Elbaz-Hayoun
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
BR
Batya Rinsky
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
CE
Chiara M Eandi
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
MG
Michelle Grunin
Specialist
1 Adult-onset foveomacular vitelliform dystrophy publication
GN
Grace E Nipp
DURHAM, NC
Specialist
2 Adult-onset foveomacular vitelliform dystrophy publications
RM
Raymond Iezzi, M.D.
ROCHESTER, MN
Specialist
PI on 1 active trial
SM
Sophie J. Bakri, M.D.
ROCHESTER, MN
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Adult-onset foveomacular vitelliform dystrophy.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Adult-onset foveomacular vitelliform dystrophy

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Caregiver Resources

NORD Caregiver Resources

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Mental Health Support

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Family & Caregiver Grants

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Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Adult-onset foveomacular vitelliform dystrophy

Which specialists treat Adult-onset foveomacular vitelliform dystrophy?

18 specialists and care centers treating Adult-onset foveomacular vitelliform dystrophy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.