Specialists for Adrenomyeloneuropathy

40 physicians and care centers identified from ClinicalTrials.gov trial PIs, PubMed publications, and the NPPES NPI registry.

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Specialists are identified from ClinicalTrials.gov principal investigators, PubMed publications, and the NPI registry, then ranked through an automated scoring pipeline.

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Herbert Budka
Rare Disease / Clinical Research
Division of Neuropathology and Neurochemistry (Obersteiner Institute
QC-verified 2
Alyssa M Volmrich
Rare Disease / Clinical Research
University of Miami Miller School of Medicine
NEW YORK, NY
QC-verified 1
Jacinda Sampson, MD, PHD
Rare Disease / Clinical Research
Children's National Hospital
STANFORD, CA
QC-verified 2
Irman Forghani, M.D
Rare Disease / Clinical Research
University of Miami Miller School of Medicine
MIAMI, FL
QC-verified 1
Casey A Maguire, Physical Therapist
Rare Disease / Clinical Research
Massachusetts General Hospital
ROLLING HILLS, CA
QC-verified 2
Yi Gong
Rare Disease / Clinical Research
Massachusetts General Hospital
QC-verified 2
Marc Engelen
Rare Disease / Clinical Research
Children's National Hospital
QC-verified 2
Lauren M Cuénant
Rare Disease / Clinical Research
University of Miami Miller School of Medicine
QC-verified 1
Reza Sadjadi
Rare Disease / Clinical Research
Children's National Hospital
QC-verified 2
Catherine Le Stunff
Rare Disease / Clinical Research
MIRCen Institute
QC-verified 3
Robin Lachmann
Rare Disease / Clinical Research
National Hospital for Neurology and Neurosurgery University College London Hospitals NHS Foundation Trust London UK.
QC-verified 2
Pierre Bougnères
Rare Disease / Clinical Research
MIRCen Institute
QC-verified 3
Ali Fatemi
Rare Disease / Clinical Research
Children's National Hospital
QC-verified 4
Paul Orchard, MD, MD
Rare Disease / Clinical Research
University of Minnesota Medical Center
MINNEAPOLIS, MN
PI×15
Florian Eichler, MD, MD
Rare Disease / Clinical Research
Massachusetts General Hospital
BOSTON, MA
PI×4
Wolfgang Köhler, MD
Rare Disease / Clinical Research
Leipzig University Medical Center, Leukodystrophy Outpatient Clinic, Department of Neurology, Leipzig, Germany
PI×2 1
Florian S Eichler, MD
Rare Disease Specialist
Massachusetts General Hospital
Boston, Massachusetts
PI×2
Mitchell S Cairo, MD, MD
Rare Disease / Clinical Research
New York Medical College
HAWTHORNE, NY
PI×14
Adeline Vanderver, MD
Rare Disease Specialist
Children's Hospital of Philadelphia
Los Angeles, California
PI×4 1
Carlos Casasnovas, MD, PhD
Rare Disease / Clinical Research
Bellvitge University Hospital
PI×1
James Heubi, MD
Rare Disease / Clinical Research
Children's Hospital Medical Center, Cincinnati
PI×1
Kenneth Setchell, PhD
Rare Disease / Clinical Research
Children's Hospital Medical Center, Cincinnati
PI×1
David Williams, MD
Rare Disease / Clinical Research
Boston Children's Hospital
PI×3
Jakub M Antczak, MD
Rare Disease Specialist
Jagiellonian University Medical College, Department of Neurology
Krakow, Lesser Poland Voivodeship
PI×6
Patrick Aubourg, MD, PhD
Rare Disease / Clinical Research
Hôpital Bicêtre
PI×3
Adrian Thrasher, MD, PhD
Rare Disease / Clinical Research
Great Ormond Street Hospital for Chidren NHS Foundation Trust
PI×2
Yilong Wang, MD,PhD
Rare Disease / Clinical Research
Beijing Tiantan Hospital, Capital Medical University, Beijing, China
PI×3
Fanny MOCHEL, MCU-PH
Rare Disease / Clinical Research
Institut du Cerveau et de la Moëlle épinière
PI×1
Caroline SEVIN, PhD
Rare Disease / Clinical Research
Kremlin Bicêtre Hôpital
PI×1
Biljana Horn, MD, M.D
Rare Disease / Clinical Research
University of Florida
SAN FRANCISCO, CA
PI×2
Vinod K Prasad, MD, FRCP
Rare Disease / Clinical Research
bluebird bio, Inc.
DURHAM, NC
PI×1
Kathleen M Zackowski, Ph.D.
Rare Disease / Clinical Research
Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
PI×1
Ettore Salsano
Rare Disease / Clinical Research
Fondazione IRCCS Istituto Neurologico C Besta
2
Jorn-Sven Kuhl, MD
Rare Disease / Clinical Research
University of Leipzig
PI×1
Christine Duncan, MD
Rare Disease / Clinical Research
Boston Children's Hospital
PI×2
Satiro de Oliveira, MD
Rare Disease / Clinical Research
University of California, Los Angeles
PI×1
Hernan Amartino, MD
Rare Disease / Clinical Research
Medeos SRL
PI×1
Nicholas Smith, MD
Rare Disease / Clinical Research
Women and Children's Hospital
PI×1
Jakob Sieker, MD., MD
Rare Disease / Clinical Research
bluebird bio, Inc.
BOSTON, MA
PI×1
Kiran Bhirangi, MD
Rare Disease Specialist
bluebird bio, Inc.
Boston, Massachusetts
PI×1

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