ADan amyloidosis

Last reviewed

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ORPHA:97346OMIM:117300E85.4+I68.0*
Who is this for?
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2Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for ADan amyloidosis.

View clinical trials →

No actively recruiting trials found for ADan amyloidosis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the ADan amyloidosis community →

Specialists

2 foundView all specialists →
LM
Lily Stern, MD
Los Angeles, California
Specialist

Rare Disease Specialist

1 ADan amyloidosis publication
SP
Seçkin Dereli, MD, Assoc. Prof.
Ordu, Ordu
Specialist

Rare Disease Specialist

Treatment Centers

8 centers
⚗️ Trial Site

Cedars Sinai Medical Center

📍 Los Angeles, California

👤 Janssen Research & Development, LLC Clinical Trial

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

Travel Grants

No travel grants are currently matched to ADan amyloidosis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about ADan amyloidosis

Disease timeline:

New trial: Artificial Intelligence Guided Echocardiographic Screening of Rare Diseases (EchoNet-Screening)

Phase NA trial recruiting. EchoNet-LVH screening for cardiac amyloidosis

New trial: ATTRACT-52: Primary Care Cardiac Amyloidosis Screening in Ordu, Turkey

Phase NA trial recruiting.

New trial: AI Echocardiographic Screening of Cardiac Amyloidosis

Phase NA trial recruiting. EchoNet-LVH Assessment

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about ADan amyloidosis

Which specialists treat ADan amyloidosis?

2 specialists and care centers treating ADan amyloidosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.