Overview
Also known as:
FDA & Trial Timeline
3 eventsNational Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) — PHASE2
Crinetics Pharmaceuticals Inc. — PHASE1, PHASE2
Post Graduate Institute of Medical Education and Research, Chandigarh
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
2 availableActhrel
To differentiate between pituitary and ectopic production of ACTH in patients with ACTH-dependent Cushing's syndrome
Orlaam
For the management of opiate dependence
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to ACTH-dependent Cushing syndrome.
Community
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Start the conversation →Latest news about ACTH-dependent Cushing syndrome
Disease timeline:
New recruiting trial: Modified Desmopressin (mDesmo) Using Cold-Kit for PET/CT
A new clinical trial is recruiting patients for ACTH-dependent Cushing syndrome
New recruiting trial: Diagnostic Value of CXCR4-targeted PET/CT in ACTH-dependent and Independent Cushing's Syndrome
A new clinical trial is recruiting patients for ACTH-dependent Cushing syndrome
New recruiting trial: Desmopressin Stimulation Test Performance in ACTH-Dependent Cushing Syndrome
A new clinical trial is recruiting patients for ACTH-dependent Cushing syndrome
New recruiting trial: A Study to Evaluate the Safety and PK of CRN04894 for the Treatment of Cushing's Syndrome
A new clinical trial is recruiting patients for ACTH-dependent Cushing syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about ACTH-dependent Cushing syndrome
Are there clinical trials for ACTH-dependent Cushing syndrome?
Yes — 3 recruiting clinical trials are currently listed for ACTH-dependent Cushing syndrome on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat ACTH-dependent Cushing syndrome?
3 specialists and care centers treating ACTH-dependent Cushing syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.