Acquired Hemophilia

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Who is this for?
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2FDA treatments1Active trials2Specialists8Treatment centers3Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Acquired Hemophilia is treated with 2 medications in our database, including Coagadex, Sevenfact. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Bio Products Laboratory, LFB. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Acquired Hemophilia treatment below.

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

NORD ↗

FDA & Trial Timeline

1 event
May 2023An Exploratory Study of Cluster of Differentiation 38 (CD38) Monoclonal Antibody Combined Corticosteroid in Acquired Hemophilia A

Institute of Hematology & Blood Diseases Hospital, China — PHASE4

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

2 available

Sevenfact

Coagulation Factor VIIa Recombinant Human· LFB

* Patient Copay Amount: $0 per fill * Maximum Annual Benefit Limit: $12,000 per calendar year * Core Eligibility Restrictions: Patients must meet program-specific qualification requirements. The Patie

Coagadex

Coagulation Factor X Human· Bio Products Laboratory

Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo

Clinical Trials

1 recruitingView all trials with filters →
Phase 41 trial
An Exploratory Study of Cluster of Differentiation 38 (CD38) Monoclonal Antibody Combined Corticosteroid in Acquired Hemophilia A
Phase 4
Actively Recruiting
PI: Lei Zhang (Chinese Academy of Medical Science and Blood Disea) · Sites: Tianjin · Age: 1899 yrs

Specialists

2 foundView all specialists →
MM
Marco Ranucci, MD
Specialist
PI on 2 active trials
DM
Daniel W McVicar
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

3 grants

PAN Foundation Hemophilia Disease Fund

PAN Foundation

Apply ↗

PAN Foundation Hemophilia Premium Fund

PAN Foundation

Apply ↗

The Assistance Fund Hemophilia Financial Assistance Program

The Assistance Fund

The Assistance Fund provides financial assistance to patients and families facing high medical out-of-pocket costs for copayments, deductibles, and other health-related expenses. Eligibility is generally based on having a covered disease diagnosis and demonstrating financial need, though specific thresholds are not provided in this text.

Apply ↗

Community

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Latest news about Acquired Hemophilia

No recent news articles for Acquired Hemophilia.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Acquired Hemophilia

What is Acquired Hemophilia?

Acquired Hemophilia is treated with 2 medications in our database, including Coagadex, Sevenfact. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Bio Products Laboratory, LFB. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Acquired Hemophilia treatment below.

How is Acquired Hemophilia inherited?

Acquired Hemophilia follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Acquired Hemophilia typically begin?

Typical onset of Acquired Hemophilia is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Acquired Hemophilia?

Yes — 1 recruiting clinical trial is currently listed for Acquired Hemophilia on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Acquired Hemophilia?

2 specialists and care centers treating Acquired Hemophilia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Acquired Hemophilia?

2 FDA-approved treatments and 1 patient support program are currently tracked on UniteRare for Acquired Hemophilia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.