Acquired angioedema

Last reviewed March 21, 2026

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ORPHA:91385OMIM:300909

Who is this for?

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1Active trials 6Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

AAE Acquired C1 inhibitor deficiency Acquired angioneurotic edema Acquired bradykinine-induced angioedema Acquired non histamine-induced angioedema

Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

1 event

Jun 2024Lanadelumab in Long-term Prophylaxis of Acquired Angioedema

Bernstein Clinical Research Center — PHASE4

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Acquired angioedema.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →

Phase 41 trial

Lanadelumab in Long-term Prophylaxis of Acquired Angioedema

Phase 4

Actively Recruiting

PI: Jonathan Bernstein, MD (5139314181) · Sites: Cincinnati, Ohio · Age: 18–99 yrs

Specialists

6 foundView all specialists →

MD

M. M. Levi, Prof. Dr.

Specialist

Acquired angioedema type 1

PI on 3 active trials

Active trials Directions Travel grants

JM

Jonathan Bernstein, MD

Specialist

Hereditary angioedema with C1Inh deficiency Hereditary angioedema with normal C1Inh

PI on 2 active trials

Active trials Directions Travel grants

MM

Michael Stevenson, MD

Specialist

Acquired angioedema type 2 Acquired Creutzfeldt-Jakob disease Acquired prothrombin deficiency+10 more

PI on 1 active trial

Active trials Directions Travel grants

TM

Tuan Le, MD

Specialist

Acquired angioedema type 2 Acquired Creutzfeldt-Jakob disease Acquired prothrombin deficiency+10 more

PI on 1 active trial

Active trials Directions Travel grants

MD

Merry Mazmanian, Dr.

Yerevan

Specialist

Rare Disease Specialist

Behçet disease Neonatal antiphospholipid syndrome Primary angiitis of the central nervous system+1 more

PI on 1 active trial

Active trials Directions Travel grants

DM

David Hoover, MD

Specialist

Acquired angioedema type 2 Acquired Creutzfeldt-Jakob disease Acquired prothrombin deficiency+10 more

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Acquired angioedema.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Acquired angioedema

Disease timeline:

New recruiting trial: Lanadelumab in Long-term Prophylaxis of Acquired Angioedema

A new clinical trial is recruiting patients for Acquired angioedema

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Acquired angioedema

Are there clinical trials for Acquired angioedema?

Yes — 1 recruiting clinical trial is currently listed for Acquired angioedema on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Acquired angioedema?

6 specialists and care centers treating Acquired angioedema are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.