X-linked Ehlers-Danlos syndrome Advocacy Hub | UniteRare

At a Glance

Live from database

🩺

Regulatory Watchboard

10 events

Mar 2026KRAZATI: New indication approved

FDAcompleted

Mar 2026ELREXFIO: New indication approved

FDAcompleted

Mar 2026ZYRTEC: New indication approved

FDAcompleted

Mar 2026XARELTO: New indication approved

FDAcompleted

Mar 2026XARELTO: New indication approved

FDAcompleted

Mar 2026XEOMIN: New indication approved

FDAcompleted

Mar 2026DHIVY: New indication approved

FDAcompleted

Mar 2026VYALEV: New indication approved

FDAcompleted

Mar 2026POLIVY: New indication approved

FDAcompleted

Feb 2026XEOMIN: New indication approved

FDAcompleted

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

5 programs

FINANCIAL LANDSCAPE SUMMARY

Total programs

Open now

Copay cards

Copay Assistance1

ZYRTEC

Kenvue Brands LLC

OpenContact for details

Patient Assistance Programs4

KANUMA

Alexion Pharmaceuticals, Inc.

OpenContact for detailsApply ↗

VIMIZIM

BioMarin Pharmaceutical Inc.

OpenContact for detailsApply ↗

POLIVY

Genentech, Inc.

OpenContact for detailsApply ↗

VYALEV

AbbVie Inc.

OpenContact for detailsApply ↗

View all support programs on disease page →

Clinical Trial Landscape

No active clinical trials currently recruiting for X-linked Ehlers-Danlos syndrome.
Search all trials →

Search clinical trials for X-linked Ehlers-Danlos syndrome →

Recent News & Research

2 articles

BREAKINGFDA

FDA Approves POLIVY

POLIVY (POLATUZUMAB VEDOTIN-PIIQ) received FDA approval.

Read ↗

BREAKINGFDA

FDA Approves PIROXICAM

PIROXICAM (PIROXICAM) received FDA approval.

Read ↗

Browse all X-linked Ehlers-Danlos syndrome news →

Specialist Network

Top 1 by expertise

Amel Karaa, MD, M.D

Massachusetts General Hospital

📍 BOSTON, MA

Score 123 trials

View all X-linked Ehlers-Danlos syndrome specialists →

Quick Actions

📄

View Disease Page

Full profile, treatments, community

🔬

Search Clinical Trials

Find recruiting studies now

🩺

Find Specialists

Ranked by expertise & trials

💰

Financial Assistance

Copay cards, PAPs, grants

📰