Advocacy intelligence hub — real-time data for patient organizations
Region Skane — NA
Kotyora Family Medicine Health Management and Education Association — NA
University Hospital, Lille
Sharmila Dorbala — PHASE3
Richmond Research Institute — NA
Medical University of Vienna
Cedars-Sinai Medical Center — NA
Gérond'if
Centro Cardiologico Monzino
Weill Medical College of Cornell University — PHASE4
Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
FINANCIAL LANDSCAPE SUMMARY
Total programs
Open now
Patient Assistance Programs1
Tegsedi
Ionis/AstraZeneca
AMVUTTRA
(VUTRISIRAN)Orphan drugsBLAAlnylam Pharmaceuticals, Inc.
Vyndaqel
(TAFAMIDIS MEGLUMINE)Orphan drugPfizer Laboratories Div Pfizer Inc
Mazen Hanna, MD, M.D
The Cleveland Clinic
📍 CLEVELAND, OH
Mathew S Maurer, MD
Columbia University
Jeff Packman, MBA
FoldRx Pharmaceuticals, Inc
MARK MCGOVERN, RN
Eidos Therapeutics, a BridgeBio company
John L Berk, M.D., D.D.S
Boston University
📍 CASTRO VALLEY, CA
Nicolas Verheyen, Res Prof, MD PhD
Medical University of Graz