Sickle cell anemia Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

10 events

Apr 2026Integrating Point of Care Testing (POCT) For Newborn Screening and Early Care for Sickle Cell Disease in Yopougon, Côte d'Ivoire

Swiss Tropical & Public Health Institute — PHASE4

TrialNOT YET RECRUITING

Mar 2026Hypoxic Red Blood Cells in Sickle Cell Anemia

Hemanext — NA

TrialNOT YET RECRUITING

Jan 2026Awake Prone Positioning for Severe Acute Chest Syndrome

Assistance Publique - Hôpitaux de Paris — NA

TrialNOT YET RECRUITING

Dec 2025Hematopoietic Stem Cell BCL11A Enhancer Gene Editing for Severe β-Hemoglobinopathies

Daniel Bauer — PHASE1

TrialRECRUITING

Jul 2025Safety, Efficacy, and Pharmacokinetics of CSL889 in Adults and Adolescents With Sickle Cell Disease During Vaso-Occlusive Crisis

CSL Behring — PHASE2

TrialRECRUITING

Jul 2025Megakaryocyte Heterogeneity in Sickle Cell Disease

Centre Hospitalier Universitaire de la Guadeloupe

TrialNOT YET RECRUITING

Jan 2025Optimizing Hydroxyurea Dosage With Pharmakokinetic in Patients Suffering of Moderate to Severe Sickle Cell Anemia

Yves Pastore — PHASE2, PHASE3

TrialNOT YET RECRUITING

Dec 2024Study to Evaluate the Safety and Tolerability of Escalating Doses of Fostamatinib in Subjects With Stable Sickle Cell Disease

National Heart, Lung, and Blood Institute (NHLBI) — PHASE1

TrialRECRUITING

Oct 2024Decision-Making and Quality of Life Surrounding Hematologic Disease and Gene Therapy

Georgetown University

TrialENROLLING BY INVITATION

Sep 2024Role of Transcranial Doppler and Magnetic Resonance Angiography for Future Management of Sickle Cell Anemia CNS.

Eman Abdul-Hai

TrialNOT YET RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

2 programs

FINANCIAL LANDSCAPE SUMMARY

Total programs

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Copay cards

Copay Assistance2

ADAKVEO

Novartis

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Hydroxyurea

Bristol Myers Squibb

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Clinical Trial Landscape

13 active trials

2Phase 3

3Phase 2

3Phase 1

1N/A

3Unknown

1PHASE1, PHASE2

13Total recruiting

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Recent News & Research

No recent news articles indexed yet for Sickle cell anemia.
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Specialist Network

Top 6 by expertise

Selim Corbacioglu, MD

University of Ulm, Germany

Score 323 trials

Jun Shi, PhD

Regenerative Medicine Center and Red Blood Cell Disorders Center

📍 Tianjin, Tianjin Municipality

Score 316 trials

Paul Szabolcs, MD

UPMC Children's Hospital of Pittsburgh

📍 Pittsburgh, Pennsylvania

Score 297 trials

Ann Haight, MD, CNA

Children's Healthcare of Atlanta/Emory

📍 TWIN FALLS, ID

Score 163 trials1 pub

Mitchell S Cairo, MD, MD

New York Medical College

📍 HAWTHORNE, NY

Score 1512 trials

Elliott Vichinsky, MD, MD

Children's Hospital & Research Center at Oakland Hematology/ Oncology, Pediatric Rehabilitation

📍 OAKLAND, CA

Score 146 trials

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