Primary hyperoxaluria Advocacy Hub | UniteRare

At a Glance

Live from database

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6Recruiting trials

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21Specialists

Regulatory Watchboard

6 events

Jun 2025Phase 1/2 Study of ABO-101 in Primary Hyperoxaluria Type 1 (redePHine)

Arbor Biotechnologies — PHASE1, PHASE2

TrialRECRUITING

Feb 2025Clinical Exploration Study of YOLT-203 in the Treatment of Type 1 Primary Hyperoxaluria (PH1)

Guangzhou Women and Children's Medical Center — EARLY_PHASE1

TrialACTIVE NOT RECRUITING

Jul 2024Clinical Exploration Study of YOLT-203 in the Treatment of Type 1 Primary Hyperoxaluria (PH1)

RenJi Hospital — EARLY_PHASE1

TrialRECRUITING

Jan 2023Retrospective and Prospective Follow-up of Patients With Primary Hyperoxaluria Type 1 Treated With Lumasiran in France.

Hospices Civils de Lyon

TrialRECRUITING

Dec 2021BONAPH1DE, A Prospective Observational Study of Patients With Primary Hyperoxaluria Type 1 (PH1)

Alnylam Pharmaceuticals

TrialACTIVE NOT RECRUITING

Apr 2021Safety & Efficacy of DCR-PHXC in Patients With PH1 and ESRD

Dicerna Pharmaceuticals, Inc., a Novo Nordisk company — PHASE2

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Primary hyperoxaluria.
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Clinical Trial Landscape

6 active trials

1Phase 2

2Unknown

1PHASE1, PHASE2

2EARLY_PHASE1

6Total recruiting

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Recent News & Research

No recent news articles indexed yet for Primary hyperoxaluria.
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Specialist Network

Top 6 by expertise

Bernd Hoppe, MD PhD

Universitätsklinikum Bonn, Dept of Paediatric Nephrology

Score 331 trial

Gesa Schalk, MD

KindernierenZentrum, Bonn, Germany

Score 232 trials1 pub

Dawn Milliner, MD, M.D

Mayo Clinic

📍 ROCHESTER, MN

Score 132 trials

Verity Rawson

Dicerna, A Novo Nordisk Company

Score 131 trial

Verity Rawson, MB.CHB

Dicerna, A Novo Nordisk Company

📍 San Francisco, California

Score 111 trial

David Goldfarb, MD

NYU Langone Health

Score 94 trials

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