Neuroferritinopathy Advocacy Hub | UniteRare

At a Glance

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4Specialists

Regulatory Watchboard

10 events

Nov 2027Study to Evaluate the Safety, Tolerability, Efficacy, and PK of FHL-301 in Parkinson's Disease Patients.

Forest Hills Lab — PHASE2

TrialNOT YET RECRUITING

Mar 2026Real-World Study of Foslevodopa/Foscarbidopa to Assess Quality of Life Outcomes in Adult Participants Earlier Within Advanced Parkinson Disease

AbbVie

TrialNOT YET RECRUITING

Feb 2026Developing Immersive Gamification Technology Systems For The Rehabilitation Management Of Adults With Parkinson's Disease (Phase 1 Trial)

Augmented eXperience E-health Laboratory — NA

TrialNOT YET RECRUITING

Jan 2026A Study to Assess Change in Disease Symptoms in Adult Participants With Advanced Parkinson Disease Using Subcutaneous Foslevodopa/Foscarbidopa in Belgium

AbbVie

TrialNOT YET RECRUITING

Dec 2025First-in-Human Study of ALN-SNCA in Adult Participants With Early Parkinson's Disease (PD)

Regeneron Pharmaceuticals — PHASE1

TrialRECRUITING

Aug 2025SCI-110 in the Treatment of Tourette Syndrome

Neurothera Labs Inc. — PHASE2

TrialNOT YET RECRUITING

Jun 2025Real-World Study of Foslevodopa/Foscarbidopa to Assess Quality of Life Outcomes in Adult Participants With Advanced Parkinson Disease

AbbVie

TrialRECRUITING

May 2025A Study to Determine if BHV-8000 is Effective, Safe and Tolerable as a Treatment for Adults Living With Early Parkinson's Disease

Biohaven Therapeutics Ltd. — PHASE2, PHASE3

TrialRECRUITING

May 2025Study to Investigate Vagus Nerve Stimulation to Augment Executive Function in Healthy and Cognitively Impaired Populations

University of Colorado, Denver — NA

TrialRECRUITING

May 2025Study to Assess Real Life Effectiveness of Foslevodopa/Foscarbidopa in Adult German Participants at Initial Stages of Advanced Parkinson's Disease (EARLY-FOS)

AbbVie

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

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Clinical Trial Landscape

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Recent News & Research

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Specialist Network

Top 4 by expertise

Thomas Klopstock, Prof. Dr.

LMU Klinikum, Munich

Score 53 trials

Chadwick Prodromos, MD, M.D

The Foundation for Orthopaedics and Regenerative Medicine

📍 GLENVIEW, IL

Score 411 trials

Subsai Kongsaengdao, M.D.

Department of Medical Services Ministry of Public Health of Thailand

Score 44 trials

Yves Agid, MD, PhD

CIC-Pitié-Salpêtrière

Score 32 trials

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