Marfan syndrome

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At a Glance

Live from database

10Recruiting trials

Regulatory Watchboard

10 events

Mar 2026Nutritional Ketosis Marfan

Washington University School of Medicine — NA

TrialNOT YET RECRUITING

Feb 2026Clinical and Psychosocial Factors Associated With Physical Activity Level in Adults With Marfan Syndrome

University of Oviedo

TrialNOT YET RECRUITING

Jan 2026Hypofractionated, 3-week, Preoperative Proton or X-ray Radiotherapy for Patients With Localized Soft Tissue Sarcoma

Oslo University Hospital — PHASE2

TrialRECRUITING

Oct 2025Multicentre Longitudinal Study of Bone Mineralisation Characteristics in Marfan Syndrome and Ehlers-Danlos Syndrome

IRCCS Policlinico S. Donato

TrialNOT YET RECRUITING

Jun 2025Fibroblasts and Thoracic Aortic Aneurysms: in Vitro Characterization in With Marfan Syndrome and Genetic Aortic Diseases

IRCCS Policlinico S. Donato

TrialENROLLING BY INVITATION

Jan 2025A Phase 1, First-in-human Study of OKN4395 and Pembrolizumab in Patients With Solid Tumors

Epkin — PHASE1

TrialRECRUITING

Jan 2025Changes in Salivary Asprosin, IL-39, IL-40 and IL-1β Levels in Diabetic Patients with Periodontitis

Necmettin Erbakan University — NA

TrialNOT YET RECRUITING

Oct 2024Asprosin in Breast Cancer

Marina Hanna Thabet Ghobrial

TrialNOT YET RECRUITING

Mar 2024An Open-label Study Comparing Lutetium (177Lu) Vipivotide Tetraxetan Versus Observation in PSMA Positive OMPC.

Novartis Pharmaceuticals — PHASE3

TrialRECRUITING

Dec 2023Proximal Aortopathy in Scotland - Epidemiology and Surgical Outcomes

Golden Jubilee National Hospital

TrialACTIVE NOT RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

2 programs

FINANCIAL LANDSCAPE SUMMARY

2

Total programs

2

Open now

2

Foundation grants

Foundation Grants2

The Assistance Fund — Marfan syndrome

The Assistance Fund

OpenContact for detailsApply ↗

NORD Patient Assistance — Marfan syndrome

NORD Patient Assistance

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Clinical Trial Landscape

10 active trials

5N/A

5Unknown

10Total recruiting

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Recent News & Research

1 article

ClinicalTrials.govFeb 5, 2026

New recruiting trial: Genetic Aortic Diseases and Cardiovascular Complications. An Observational Survey of Risk Factors.

The aim of this observational study is to define the behavioural and cardiovascular risk factor profiles of patients with genetic aortopathies. The main questions it aims to answer are: * How do the ...

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Specialist Network

Top 6 by expertise

Shaine A Morris, MD, MPH

Baylor College of Medicine

📍 Houston, Texas

Score 342 trials

Thomas EDOUARD, MD

University Hospital, Toulouse

📍 Montpellier

Score 253 trials

Alessandro Pini, MD

Cardiovascular-Gentic Centre, IRCCS Policlinico San Donato

📍 San Donato Milanese, Lombardy

Score 53 trials

Rosanna Cardani, PhD

IRCCS Policlinico S. Donato

📍 San Donato Milanese, Milan

Duk-Kyung Kim

Samsung Medical Center

Bart Loeys, M.D

University Hospital, Antwerp

📍 BALTIMORE, MD

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