Li-Fraumeni syndrome Advocacy Hub | UniteRare

At a Glance

Live from database

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9Recruiting trials

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16Specialists

Regulatory Watchboard

10 events

Apr 2026Clinical Genetics Branch Eligibility Screening Survey

National Cancer Institute (NCI)

TrialNOT YET RECRUITING

Feb 2025Long-term Safety of Nipple Sparing Mastectomy in Women With High Penetrance Breast Cancer Susceptibility Genes in Breast Cancer

Sir Mortimer B. Davis - Jewish General Hospital

TrialRECRUITING

Apr 2024CfDNA in Hereditary And High-risk Malignancies 2

University Health Network, Toronto

TrialRECRUITING

Mar 2024Video Capsule Examination in Patients With Lynch Syndrome

Royal Marsden NHS Foundation Trust — NA

TrialRECRUITING

Dec 2023Arsenic Trioxide Combined With Chemotherapy for the Treatment of p53-mutated Pediatric Cancer

Yang Li — PHASE2

TrialRECRUITING

Nov 2022Willingness to Participate in a Trial Comparing Standard Genetic Counseling Versus Personalized Genetic Counseling

M.D. Anderson Cancer Center

TrialRECRUITING

Sep 2020Li-Fraumeni & TP53 (LiFT UP): Understanding and Progress

Dana-Farber Cancer Institute

TrialRECRUITING

Jul 2020Registry of Li Fraumeni and Li Fraumeni Like Syndromes

Istituto Ortopedico Rizzoli

TrialRECRUITING

Sep 2019Li-Fraumeni Syndrome/TP53 Biobank

Abramson Cancer Center at Penn Medicine

TrialRECRUITING

Jun 2016Li-Fraumeni Syndrome Imaging Study

The Hospital for Sick Children — NA

TrialENROLLING BY INVITATION

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Li-Fraumeni syndrome.
Check the disease page for updates →

Clinical Trial Landscape

9 active trials

1Phase 2

4N/A

4Unknown

9Total recruiting

Search clinical trials for Li-Fraumeni syndrome →

Recent News & Research

No recent news articles indexed yet for Li-Fraumeni syndrome.
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Specialist Network

Top 6 by expertise

Allison O'Neill, MD

Dana-Farber Cancer Institute

Score 83 trials1 pub

Sharon A Savage, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 67 trials

Kim E. Nichols, MD

St. Jude Children's Research Hospital

📍 Memphis, Tennessee

Score 52 trials

Paul M Hwang, M.D.

National Heart, Lung, and Blood Institute (NHLBI)

Score 32 trials

Laura C Hernández Ramírez, MD, PhD

Universidad Nacional Autonoma de Mexico

📍 Mexico City, Mexico City

Score 31 trial

Payal P Khincha, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 33 trials

View all Li-Fraumeni syndrome specialists →

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