Lethal ataxia with deafness and optic atrophy Advocacy Hub | UniteRare

At a Glance

Live from database

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3Recruiting trials

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17Specialists

Regulatory Watchboard

10 events

Mar 2026Dasatinib for HIV-1 Reservoir Reduction

National Institute of Allergy and Infectious Diseases (NIAID) — PHASE1

TrialNOT YET RECRUITING

Mar 2026Baricitinib Curative Repression of HIV-1

Emory University — PHASE2

TrialNOT YET RECRUITING

Mar 2026Intervention Development for Syndemics Among PWH in SA

Massachusetts General Hospital — NA

TrialNOT YET RECRUITING

Feb 2026Comparison of Integrated Neuromuscular Inhibition Technique (INIT) and Active Release Technique (ART) in Patients With Upper Trapezius Trigger Points

Lahore University of Biological and Applied Sciences — NA

TrialNOT YET RECRUITING

Jan 2026Lenacapavir Intensification to Disrupt HIV Reservoirs in Virologically Suppressed People With HIV Receiving Antiretroviral Therapy

National Institute of Allergy and Infectious Diseases (NIAID) — PHASE1

TrialRECRUITING

Jan 2026The Physical and Mental Impact of ART: IVM vs Conventional Ovarian Stimulation

Universitair Ziekenhuis Brussel — NA

TrialNOT YET RECRUITING

Dec 2025Testing the WeCare Intervention to Address Mental Health and Medication Adherence Challenges Among MSM in South Africa

Emory University — NA

TrialNOT YET RECRUITING

Nov 2025Reducing Stigma in People Who Inject Drugs (PWID) With HIV Using a Rapid Start Antiretroviral Therapy Intervention (ART)

Yale University — NA

TrialRECRUITING

Sep 2025Immunologic and Virologic Parameters During Analytical Treatment Interruption Following Combination bNAb Therapy During Suppressive ART

National Institute of Allergy and Infectious Diseases (NIAID) — PHASE1

TrialENROLLING BY INVITATION

Aug 2025Mandala and Music for PMS Relief

Rukiye Duman — NA

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Lethal ataxia with deafness and optic atrophy.
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Clinical Trial Landscape

3 active trials

1Phase 4

2N/A

3Total recruiting

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Recent News & Research

No recent news articles indexed yet for Lethal ataxia with deafness and optic atrophy.
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Specialist Network

Top 6 by expertise

Irini Sereti, M.D.

National Institute of Allergy and Infectious Diseases (NIAID)

📍 BETHESDA, MD

Score 157 trials

Grant Theron, PhD

University of Stellenbosch

Score 44 trials

Oleg A Shchelochkov, M.D., MD

National Human Genome Research Institute (NHGRI)

📍 IOWA CITY, IA

Score 31 trial

Clara James, PhD

HES-SO University of Applied Sciences and Arts Western Switzerland

Score 31 trial

Kathleen R Agres, PhD

National University of Singapore

Score 21 trial

Renee Heffron, PhD, MPH

University of Washington

Score 22 trials

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