Advocacy intelligence hub — real-time data for patient organizations
LAMOTRIGINE: New indication approved
LAMOTRIGINE KIT: New indication approved
LAMOTRIGINE: New indication approved
LAMOTRIGINE: New indication approved
LAMOTRIGINE: New indication approved
TOPIRAMATE: New indication approved
Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
FINANCIAL LANDSCAPE SUMMARY
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Copay cards
Copay Assistance2
Onfi
Lundbeck
Lamictal
Glaxo Wellcome Research and Development
Patient Assistance Programs3
Fintepla
(fenfluramine)Orphan drugUCB, Inc.
12.1 Mechanism of Action The precise mechanism by which fenfluramine exerts its therapeutic effects in the treatment of seizures associated with Drave...
Epidiolex
(CANNABIDIOL)Orphan drugJazz Pharmaceuticals, Inc.
12.1 Mechanism of Action The precise mechanisms by which EPIDIOLEX exerts its anticonvulsant effect in humans are unknown. Cannabidiol does not appear...
Onfi
(clobazam)Orphan drugLundbeck, Inc.
Benzodiazepine [EPC]
12.1 Mechanism of Action The exact mechanism of action for clobazam, a 1,5-benzodiazepine, is not fully understood but is thought to involve potentiat...
Banzel
(rufinamide)Orphan drugEisai, Inc.
12.1 Mechanism of Action The precise mechanism(s) by which rufinamide exerts its antiepileptic effect is unknown. The results of in vitro studies sugg...
Topamax
(Topiramate)Orphan drugJohnson & Johnson Pharmaceutical R & D, LLC
12.1 Mechanism of Action The precise mechanisms by which topiramate exerts its anticonvulsant and preventive migraine effects are unknown; however, pr...
Lamictal
(Lamotrigine)Orphan drugGlaxo Wellcome Research and Development
Anti-epileptic Agent [EPC]
12.1 Mechanism of Action The precise mechanism(s) by which lamotrigine exerts its anticonvulsant action are unknown. In animal models designed to dete...
Felbamate
(FELBAMATE)Orphan drugTaro Pharmaceuticals U.S.A., Inc.
Anti-epileptic Agent [EPC]
Mechanism of Action The mechanism by which felbamate exerts its anticonvulsant activity is unknown, but in animal test systems designed to detect anti...
A temporary spike: Investigating Lennox-Gastaut syndrome incidence in the US following FDA approval of cannabidiol.
In June 2018, the US Food and Drug Administration (FDA) approved pharmaceutical grade cannabidiol (CBD; Epidiolex®) for the treatment of seizures associated with Lennox-Gastaut syndrome (LGS). We...
Soticlestat for drug-resistant epilepsy: Current evidence and clinical perspectives.
Epilepsy, particularly drug-resistant epilepsy, remains a significant clinical challenge, with many patients failing to achieve seizure control through conventional antiseizure medications. This unmet...
EEG findings in Lennox-Gastaut syndrome: Pursuing a moving target.
Lennox-Gastaut Syndrome (LGS) is a life-long, drug-resistant developmental epileptic encephalopathy (DEE) that develops in young children between 18 and 24 months of age and up to 18 years of age. The...
Systematic Review and Meta-Analysis of Bilateral Centromedian Nucleus Neuromodulation for Multifocal and Generalized Epilepsy.
Generalized and multifocal forms of drug-resistant epilepsy are highly prevalent but have limited treatment options. Centromedian nucleus (CMN) thalamic neuromodulation has emerged as an effective tre...
Invasive Neuromodulation in Lennox-Gastaut Syndrome: A Systematic Review and Meta-Analysis.
Lennox-Gastaut syndrome (LGS) is a highly drug-resistant epileptic encephalopathy. The high seizure burden in LGS contributes to substantial morbidity, reduced quality of life, and increased mortality...
Charlotte Dravet: Life and contributions to epileptology.
Charlotte Dravet: Life and contributions to epileptology.
Sandi Lam, MD MBA
Ann & Robert H Lurie Children's Hospital of Chicago
Amit Ray, MD
Harmony Biosciences Management, Inc.
📍 Kissimmee, Florida
Hiroki Takano
Neuroscience Clinical Development Section. JAC PCU. Eisai Co., Ltd.
Martha Morrell, MD, MD
NeuroPace, Inc.
📍 STANFORD, CA
Dennis J Dlugos, MD, M.D
Children's Hospital of Philadelphia
📍 PHILADELPHIA, PA
Marc Kamin, MD, MD
SK Life Science, Inc.
📍 OYSTER BAY, NY