Idiopathic multidrug-resistant nephrotic syndrome Advocacy Hub | UniteRare

At a Glance

Live from database

Regulatory Watchboard

9 events

Apr 2026An Open-Label Phase 2 Study of N-Acetyl-D-Mannosamine (ManNAc) in Subjects With Primary Focal Segmental Glomerulosclerosis

National Human Genome Research Institute (NHGRI) — PHASE2

TrialRECRUITING

Feb 2026A Study to Find Out if BI 764198 Helps Adults and Adolescents With a Kidney Condition Called Focal Segmental Glomerulosclerosis (FSGS)

Boehringer Ingelheim — PHASE3

TrialRECRUITING

Dec 2025A Study of Praliciguat in Participants With Focal Segmental Glomerulosclerosis (FSGS)

Akebia Therapeutics — PHASE2

TrialRECRUITING

Dec 2024A Study to Evaluate the Efficacy and Safety of Frexalimab, Brivekimig, or Rilzabrutinib in Participants Aged 16 to 75 Years With Primary Focal Segmental Glomerulosclerosis or Minimal Change Disease

Sanofi — PHASE2

TrialRECRUITING

Dec 2023AMPK-activation by Metformin in FSGS: AMP-FSGS

Yale University — PHASE1, PHASE2

TrialRECRUITING

Dec 2022Recurrence Post-transplant Observational Study in Focal Segmental Glomerulosclerosis and Minimal Change Disease

University of Michigan

TrialRECRUITING

Jan 2020Post Approval Study for Treatment of Drug-resistant Adult and Pediatric Primary FSGS Using the LIPOSORBER® LA-15 System

Kaneka Medical America LLC — NA

TrialRECRUITING

Apr 2018Study of Sparsentan in Patients With Primary Focal Segmental Glomerulosclerosis (FSGS)

Travere Therapeutics, Inc. — PHASE3

TrialACTIVE NOT RECRUITING

May 2015Post Approval Study of Liposorber LA-15 System for the Treatment of Focal Segmental Glomerulosclerosis in Children

Kaneka Medical America LLC — NA

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Idiopathic multidrug-resistant nephrotic syndrome.
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Clinical Trial Landscape

9 active trials

2Phase 3

3Phase 2

2N/A

1Unknown

1PHASE1, PHASE2

9Total recruiting

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Recent News & Research

No recent news articles indexed yet for Idiopathic multidrug-resistant nephrotic syndrome.
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Specialist Network

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