Hereditary steroid-resistant nephrotic syndrome Advocacy Hub | UniteRare

At a Glance

Live from database

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5Recruiting trials

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29Specialists

Regulatory Watchboard

10 events

Dec 2025A Sequential Phase 2/3 Study of APL2 in Patients With Focal Segmental Glomerulosclerosis

Apellis Pharmaceuticals, Inc. — PHASE2, PHASE3

TrialNOT YET RECRUITING

Mar 2025A Phase 1 Trial to Evaluate the Safety, Tolerability, Pharmacodynamics, Pharmacokinetics, and Immunogenicity of VIS171 in Participants With Autoimmune Disease(s)

Otsuka Pharmaceutical Development & Commercialization, Inc. — PHASE1

TrialRECRUITING

Nov 2024REduced-dose Steroid PrOtocol for Childhood Nephrotic SyndromE (RESPONSE)

The Hospital for Sick Children — PHASE3

TrialRECRUITING

Jun 2024Predictive Determinants of Nephrotic Syndrome Remission in Patients With At-risk Polymorphism of APOL1

Assistance Publique - Hôpitaux de Paris

TrialNOT YET RECRUITING

Apr 2024Circulating Factors in Nephrotic Syndrome

Iain Bressendorff

TrialNOT YET RECRUITING

Mar 2024Autoantibodies Against-nephrin in Idiopathic Nephrotic Syndrome

Mario Negri Institute for Pharmacological Research

TrialRECRUITING

Apr 2023Janus Kinase-STAT Inhibition to Reduce APOL1 Associated Kidney Disease

Duke University — PHASE2

TrialRECRUITING

Jan 2023ARREST-NEPHROSIS - Austrian Resistant Nephrotic Syndrome Treatment Response Registry and Biobank

Christoph Aufricht

TrialRECRUITING

Sep 2022A Pilot Trial of taVNS for SRNS in Children (kidNEY-VNS)

Northwell Health — NA

TrialRECRUITING

May 2022A Study of the Efficacy and Safety of DMX-200 in Patients With FSGS Who Are Receiving an ARB

Dimerix Bioscience Pty Ltd — PHASE3

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Hereditary steroid-resistant nephrotic syndrome.
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Clinical Trial Landscape

5 active trials

2Phase 3

3Unknown

5Total recruiting

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Recent News & Research

No recent news articles indexed yet for Hereditary steroid-resistant nephrotic syndrome.
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Specialist Network

Top 6 by expertise

William A Gahl, M.D.

National Human Genome Research Institute (NHGRI)

📍 Bethesda, Maryland

Score 2412 trials

Gerald B Appel, MD, M.D

Columbia University

📍 NEW YORK, NY

Score 122 trials1 pub

Fernando Fervenza, MD, M.D

Mayo Clinic

📍 ROCHESTER, MN

Score 83 trials

Radko Komers, MD, PhD, M.D

Travere Therapeutics, Inc.

📍 PORTLAND, OR

Score 85 trials

Giuseppe Remuzzi, MD

Istituto Di Ricerche Farmacologiche Mario Negri

Score 77 trials

Yasar Caliskan, MD, MD

Division of Nephrology, Department of Internal Medicine, Istanbul Faculty of Medicine

📍 NASHVILLE, TN

Score 73 trials

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