Hereditary retinoblastoma Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

10 events

Mar 2026Detailed Phenotypic and Genotype Study to Correlate RB1 Mutations Relating to Primary Ocular Tumors and Secondary Extra-ocular Metastasis.

University of Washington

TrialRECRUITING

Apr 2025High-dose Topotecan for Retinoblastoma With Recurrent or Refractory Vitreous Seed

Eye & ENT Hospital of Fudan University — EARLY_PHASE1

TrialRECRUITING

Feb 2025Retinoblastoma Phase II Expanded Access Clinical Trial

Targeted Therapy Technologies, LLC — PHASE2

TrialRECRUITING

Dec 2024Targeting NUDT21 siRNA Drugs for Patients With Refractory Retinoblastoma

Eye & ENT Hospital of Fudan University — EARLY_PHASE1

TrialRECRUITING

Jan 2024Trilateral Retinoblastoma: Incidence and Outcomes

Amsterdam UMC, location VUmc

TrialRECRUITING

Oct 2023Cognitive Functioning and Health Related Quality of Life in Retinoblastoma Survivors

Amsterdam University Medical Center

TrialENROLLING BY INVITATION

Nov 2022A Study to Give Treatment Inside the Eye to Treat Retinoblastoma

Children's Oncology Group — PHASE2

TrialRECRUITING

Mar 2021Ocular Conservative Treatment for Retinoblastoma : Efficacy of the New Management Strategies and Visual Outcome

Institut Curie — PHASE2, PHASE3

TrialRECRUITING

Mar 2021Topotecan and Melphalan for Retinoblastoma

Sun Yat-sen University — PHASE3

TrialRECRUITING

Nov 2020Therapeutic Recommendations For The Treatment Of Children With A Retinoblastoma

French Africa Pediatric Oncology Group

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Hereditary retinoblastoma.
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Clinical Trial Landscape

23 active trials

3Phase 3

6Phase 2

1N/A

10Unknown

1PHASE2, PHASE3

2EARLY_PHASE1

23Total recruiting

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Recent News & Research

No recent news articles indexed yet for Hereditary retinoblastoma.
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Specialist Network

Top 6 by expertise

Sara M. Federico, MD, MD

St. Jude Children's Research Hospital

📍 MEMPHIS, TN

Score 183 trials

Danielle Novetsky Friedman, MD

Memorial Sloan Kettering Cancer Center

Score 121 trial

Huashen Yang

Sun Yat-sen University

Score 111 trial481 pubs

Carlos Rodriguez-Galindo, MD, MD

St. Jude Children's Research Hospital

📍 MEMPHIS, TN

Score 104 trials

Rosandra N Kaplan, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 94 trials

Stewart Goldman, MD

Ann & Robert H Lurie Children's Hospital of Chicago

Score 95 trials

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