Hereditary pheochromocytoma-paraganglioma Advocacy Hub | UniteRare

At a Glance

Live from database

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10Recruiting trials

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20Specialists

Regulatory Watchboard

10 events

Oct 2025Cardiovascular Complications After Adrenalectomy for Pheochromocytoma and Non-secreting Tumors

Central Hospital, Nancy, France

TrialNOT YET RECRUITING

Aug 2025[212Pb]VMT-Alpha-NET in Metastatic or Inoperable Somatostatin-Receptor Positive Gastrointestinal Neuroendocrine Tumors, Pheochromocytoma/Paragangliomas, Small Cell Lung, Renal Cell, and Head and Neck Cancers

National Cancer Institute (NCI) — PHASE1

TrialRECRUITING

May 2025Anlotinib Combined With Benmelstobart for Advanced Pheochromocytoma

Sun Yat-sen University — PHASE2

TrialNOT YET RECRUITING

Jun 2024Using the EHR to Advance Genomic Medicine Across a Diverse Health System

University of Pennsylvania — NA

TrialRECRUITING

Jun 2024Hereditary Pheochromocytoma Assessment of Tumour Immunologies

Radboud University Medical Center

TrialRECRUITING

Dec 2023Trial of Lu-177 DOTATATE (Lutathera®) in Unlicensed Indications

University College, London — PHASE2

TrialNOT YET RECRUITING

Oct 2023Development of a Predictive Model for the Risk of Metastatic Disease in PPGLs, a Retrospective Cohort Study

Rigshospitalet, Denmark

TrialNOT YET RECRUITING

Jan 2023The Effect and Safety of Omitting Preoperative Alpha-adrenergic Blockade for Normotensive Pheochromocytoma

Seoul National University Hospital — PHASE4

TrialRECRUITING

Jul 2022Prognostic's Factors of Head and Neck Paragangliomas Evolution

Hospices Civils de Lyon

TrialACTIVE NOT RECRUITING

Jul 2022Testing the Combination of Anti-Cancer Drugs Talazoparib and Temozolomide in Patients With Advanced Stage Rare Cancers, RARE 2 Trial

National Cancer Institute (NCI) — PHASE2

TrialACTIVE NOT RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Hereditary pheochromocytoma-paraganglioma.
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Clinical Trial Landscape

10 active trials

1Phase 4

1Phase 2

2Phase 1

3N/A

3Unknown

10Total recruiting

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Recent News & Research

No recent news articles indexed yet for Hereditary pheochromocytoma-paraganglioma.
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Browse all Hereditary pheochromocytoma-paraganglioma news →

Specialist Network

Top 6 by expertise

W. Marston Linehan, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 116 trials

Christine A Pratilas

Children's Oncology Group

📍 Birmingham, Alabama

Score 81 trial

Kim E. Nichols, MD

St. Jude Children's Research Hospital

📍 Memphis, Tennessee

Score 52 trials

Maria Lourdes Posadas Martinez, PhD

HIBA

Score 31 trial

Patricia L Dahia, MD, PhD

The University of Texas Health Science Center at San Antonio

Score 32 trials

Laura C Hernández Ramírez, MD, PhD

Universidad Nacional Autonoma de Mexico

📍 Mexico City, Mexico City

Score 31 trial

View all Hereditary pheochromocytoma-paraganglioma specialists →

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