Hereditary hemorrhagic telangiectasia Advocacy Hub | UniteRare

At a Glance

Live from database

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14Recruiting trials

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45Specialists

Regulatory Watchboard

10 events

Jul 2026Quality of Life in Pediatric Participants With HHT

Ashley Nelson

TrialNOT YET RECRUITING

Mar 2026VAH vs VA in Newly Diagnosed Elderly AML

Shanghai General Hospital, Shanghai Jiao Tong University School of Medicine — PHASE3

TrialNOT YET RECRUITING

Dec 2025A Trial of TER-1754 in Patients With Hereditary Hemorrhagic Telangiectasia

Terremoto Biosciences Inc. — PHASE1

TrialRECRUITING

Oct 2025Efficacy and Tolerance of Treatment With Bevacizumab for Severe Liver Involvement With High Cardiac Output in Hereditary Hemorrhagic Telangiectasia Within the French Hereditary Hemorrhagic Telangiectasia Network

Poitiers University Hospital

TrialENROLLING BY INVITATION

Sep 2025Immunological Effects of Iron Supplementation in HHT Disease

Hospices Civils de Lyon — NA

TrialRECRUITING

Aug 2025Cardiac Evaluation in Hereditary Hemorrhagic Telangiectasia

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

TrialNOT YET RECRUITING

Aug 2025Efficacy and Safety of VAH as a Bridging Regimen to Allo-HCT in Relapsed/Refractory AML

Ruijin Hospital — PHASE2

TrialNOT YET RECRUITING

Apr 2025Homoharringtonine Plus Androgen Deprivation Therapy in the Neoadjuvant Treatment of Prostate Cancer: A Single-Arm Clinical Study

baotai Liang — PHASE2

TrialRECRUITING

Mar 2025Clinical Study on Neoadjuvant Therapy of Homoharringtonine Combined With Androgen Deprivation for Prostate Cancer

baotai Liang — PHASE2

TrialRECRUITING

Jan 2025HVA vs IA/DA or VA in the Treatment of ND HR-AML

Nanfang Hospital, Southern Medical University — PHASE3

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Hereditary hemorrhagic telangiectasia.
Check the disease page for updates →

Clinical Trial Landscape

14 active trials

2Phase 2

1Phase 1

1N/A

7Unknown

1PHASE2, PHASE3

2PHASE1, PHASE2

14Total recruiting

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Recent News & Research

No recent news articles indexed yet for Hereditary hemorrhagic telangiectasia.
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Specialist Network

Top 6 by expertise

Claire L Shovlin

Imperial College London

Score 397 trials6 pubs

Marie E Faughnan, MD,MSc,FRCPC

Unity Health Toronto

Score 341 trial

Marie E Faughnan, MD MSc FRCPC

Unity Health Toronto

Score 343 trials

Marcelo M Serra, MD

HHT Center of Excelence Hospital Italiano de Buenos Aires

Score 331 trial

Sophie DUPUIS-GIROD

Hospices Civils de Lyon

Score 332 trials15 pubs

Scott O Trerotola, MD, MD

University of Pennsylvania

📍 PHILADELPHIA, PA

Score 211 trial

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