Hereditary amyloidosis Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

10 events

Apr 2026Impact of a Cardiac Rehabilitation Program on Patients With Cardiac Amyloidosis

University Hospital, Montpellier — NA

TrialNOT YET RECRUITING

Feb 2026Southeastern ATTR Amyloidosis Consortium: SEATTRAC Family Registry

Virginia Commonwealth University

TrialNOT YET RECRUITING

Feb 2026A Study Of Deep Learning For Echo Analysis, Tracking, And Evaluation

Mayo Clinic

TrialNOT YET RECRUITING

Dec 2025Determining the Association of TTR Stabilizing Therapy With Circulating TTR Amyloid Aggregates Over Time in Patients With ATTR-CM: Longitudinal Biomarker Study

University of Texas Southwestern Medical Center

TrialRECRUITING

Nov 2025The Eplontersen Pregnancy and Lactation Outcomes Study

AstraZeneca

TrialRECRUITING

Nov 2025Enavogliflozin for the Management of Patients With Amyloid CardiomyopaThy

Seoul St. Mary's Hospital — PHASE4

TrialNOT YET RECRUITING

Nov 2025To Evaluate the Long-term Safety and Tolerability of Acoramidis in Participants With Newly Diagnosed ATTR-CM (ACT-EARLY OLE)

Eidos Therapeutics, a BridgeBio company — PHASE3

TrialNOT YET RECRUITING

Sep 2025US Benchmarking Clinical Study

eMyosound SAS

TrialRECRUITING

Jun 2025To Evaluate the Efficacy and Safety of Tafamidis Meglumine Soft Capsules in the Treatment of Adult Patients With Transthyretin Amyloid Polyneuropathy

Qilu Pharmaceutical Co., Ltd. — PHASE4

TrialRECRUITING

Jan 2025An Observational Study Using Artificial Intelligence (AI) Algorithms on Electrocardiography (ECG), Point-of-care Ultrasound (POCUS), and Transthoracic Echocardiophy (TTE) to Estimate the Under-diagnosis of Transthyretin Amyloid Cardiomyopathy (ATTR-CM) Across a Diverse Range of US Health Systems.

Yale University

TrialACTIVE NOT RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

8 programs

FINANCIAL LANDSCAPE SUMMARY

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WAINUA

AstraZeneca

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Travel Grants7

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AstraZeneca Access 360™

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AstraZeneca Co Pay Savings & Assistance Programs

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AstraZeneca Oncology Patient Transportation Program

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AstraZeneca Patient Assistance and Reimbursement Guide

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AstraZeneca Patient Support

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AstraZeneca Savings and Insurance Support

AstraZeneca

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Clinical Trial Landscape

4 active trials

1Phase 3

1Phase 2

2Unknown

4Total recruiting

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Recent News & Research

No recent news articles indexed yet for Hereditary amyloidosis.
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Specialist Network

Top 6 by expertise

Sharmila Dorbala, MD, MD

Brigham and Women's Hospital (AHA and NIH Studies)

📍 BOSTON, MA

Score 33 trials

Anissa MEGZARI

Centre Hospitalier Universitaire de Nīmes

Score 315 trials1 pub

Merrill D. Benson

Indiana University School of Medicine

Score 01 trial

Robert E O'Donnell

University of Cincinnati

Score 01 trial

He Huang, PhD

The First Affiliated Hospital of Zhejiang University School of Medicine

📍 Hanzhou, Zhejiang

Score 07 trials

Chafic Karam, M.D

University of Pennsylvania

📍 PORTLAND, OR

Score 01 trial

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