Hemophilia Advocacy Hub | UniteRare

At a Glance

Live from database

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Regulatory Watchboard

10 events

Apr 2026An Observational Study to Learn More About How Well Damoctocog Alfa Pegol Works in Previously Treated Children With Hemophilia A

Bayer

TrialNOT YET RECRUITING

Apr 2026Oral Health Status and Oral Health Related Quality of Life in a Group pf Egyptian Hemophilic Children

Cairo University — NA

TrialNOT YET RECRUITING

Apr 20263D Ultrasound in Hemophilic Ankles

The Hospital for Sick Children — NA

TrialNOT YET RECRUITING

Mar 2026Effectiveness of an Educational Program for Pain Management in Patients With Hemophilic Arthropathy

Investigación en Hemofilia y Fisioterapia — NA

TrialNOT YET RECRUITING

Mar 2026Post Approval Observational Study to Learn More About How Safe Octocog Alfa is and How Well it Works in Patients With Severe Hemophilia A in India

Bayer

TrialNOT YET RECRUITING

Mar 2026PCC Treatment for Hemophilia Patients With Inhibitor（2022PCC-A）

Institute of Hematology & Blood Diseases Hospital, China — PHASE4

TrialRECRUITING

Mar 2026SAFE Study: Safety of aPCC Following Emicizumab Prophylaxis

Emory University — PHASE3

TrialRECRUITING

Mar 2026Study of a Smart Sharps Disposal Device in Patients With Hemophilia

University of Pennsylvania — NA

TrialNOT YET RECRUITING

Feb 2026Incidence of Ultrasonographically Detected Articular Damage in Initially Healthy Joints of Patients With Hemophilia A Receiving Prophylactic Treatment With Emicizumab

Investigación en Hemofilia y Fisioterapia

TrialNOT YET RECRUITING

Feb 2026Determinants and Consequences of the Transition to Adulthood for Adolescents With Severe Haemophilia: TRANSHEMO 2, an Ancillary Study to the TRANSHEMO Project

Assistance Publique Hopitaux De Marseille

TrialNOT YET RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Hemophilia.
Check the disease page for updates →

Approved Treatments

1 FDA-approved

tranexamic acid

(TRANEXAMIC ACID)Orphan drugstandard

Avenacy, Inc.

FDA label ↗

View full treatment details on disease page →

Clinical Trial Landscape

53 active trials

12Phase 3

8Phase 4

2Phase 2

2Phase 1

8N/A

16Unknown

5PHASE1, PHASE2

53Total recruiting

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Recent News & Research

1 article

BREAKINGFDA

FDA Approves TRANEXAMIC ACID

TRANEXAMIC ACID (TRANEXAMIC ACID) received FDA approval.

Read ↗

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Specialist Network

Top 6 by expertise

Lei Zhang, Ph.D

Hospital of Hematology, Chinese Academy of Medical Sciences

Score 332 trials

Rubén Cuesta-Barriuso, PhD

Universidad de Oviedo

Score 3219 trials

Savita Rangarajan, FRCP FRCPath

Basingstoke & North Hampshire Hospital

Score 281 trial

Cristina Solomon, MD

Octapharma

Score 285 trials

Elena Santagostino, MD

Sobi Investigational Site

📍 Sofia

Score 273 trials

Marc TROSSAERT, Dr

Nantes University Hospital

Score 221 trial

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