Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome

Advocacy intelligence hub — real-time data for patient organizations

View full disease page →Search clinical trials →
Download CSV

At a Glance

Live from database

Regulatory Watchboard

2 events
Feb 2026SOGROYA: New indication approved
FDAcompleted
Apr 2023

Sogroya: FDA approved

Treatment of pediatric patients aged 2.5 years and older who have growth failure due to inadequate secretion of endogenous growth hormone (GH)

FDAcompleted

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

0

Total programs

No financial assistance programs currently listed for Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome.
Check the disease page for updates →

Approved Treatments

1 FDA-approved

Sogroya

(somapacitan-beco)Orphan drug

Novo Nordisk Pharmaceuticals

12.1 Mechanism of Action Somapacitan-beco binds to a dimeric GH receptor in the cell membrane of target cells resulting in intracellular signal transd...

Approved Apr 2023FDA label ↗

View full treatment details on disease page →

Clinical Trial Landscape

No active clinical trials currently recruiting for Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome.
Search all trials →
Search clinical trials for Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome

Recent News & Research

No recent news articles indexed yet for Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome.
Search PubMed for Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome

Browse all Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome news →

Specialist Network

No specialists currently listed for Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome.

View all Growth and developmental delay-hypotonia-vision impairment-lactic acidosis syndrome specialists →

Quick Actions