Advocacy intelligence hub — real-time data for patient organizations
Tippi Mackenzie — PHASE1
Azafaros A.G. — PHASE3
National Human Genome Research Institute (NHGRI) — PHASE1, PHASE2
Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
FINANCIAL LANDSCAPE SUMMARY
Total programs
Paul Orchard, MD, MD
University of Minnesota Medical Center
📍 MINNEAPOLIS, MN
Florian Eichler, MD, MD
Massachusetts General Hospital
📍 BOSTON, MA
Adeline Vanderver, MD
Children's Hospital of Philadelphia
📍 Los Angeles, California
Joanne Kurtzberg, MD, M.D
Duke University
📍 DURHAM, NC
Joe TR Clarke, MD
The Hospital for Sick Children, Toronto Canada
Jeanine R. Jarnes, PharmD
University of Minnesota - Fairview
📍 MINNEAPOLIS, MN