Frontotemporal dementia Advocacy Hub | UniteRare

At a Glance

Live from database

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30Recruiting trials

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95Specialists

Regulatory Watchboard

10 events

Feb 2026Social-cognitive Functioning: Validation of a New Neuropsychological Test

Assistance Publique - Hôpitaux de Paris — NA

TrialRECRUITING

Jan 2026Prospective Observational Study of the Relationship Between Sociodemographic Factors, Blood-based Biomarkers and Psychiatric Symptoms in Neurodegenerative Diseases and Mental Disorders

Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau

TrialENROLLING BY INVITATION

Nov 2025A Phase Ib/III Study of Suvemcitug Plus FTD/TPI in Participants With Refractory Metastatic Colorectal Cancer

Jiangsu Simcere Pharmaceutical Co., Ltd. — PHASE3

TrialRECRUITING

Oct 2025Metabolic Characterization of Alzheimer's Disease and Frontotemporal Dementia by 23Na-MRI and FDG-PET

Centre Hospitalier St Anne — NA

TrialNOT YET RECRUITING

Oct 2025Investigator Initiated Study for the Safety and Efficacy in Frontotemporal Dementia

Hee-Jin Kim — PHASE2

TrialNOT YET RECRUITING

Aug 2025Single-centre Descriptive Study of Taste in Frontotemporal Lobar Degeneration Through the Analysis of Taste Evoked Potentials

Centre Hospitalier Universitaire Dijon — NA

TrialRECRUITING

Aug 2025Evaluation of the Safety and Efficacy of Treatment w/High Dose Melphalan Given Directly Into the Liver Followed by Treatment w/Approved Cancer Treatment or Approved Cancer Treatment Alone in Patients w/ Metastatic Colorectal Cancer w/Liver Dominant Disease

Delcath Systems Inc. — PHASE2

TrialRECRUITING

Jun 2025A Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease (NPC)

Azafaros A.G. — PHASE3

TrialRECRUITING

Jun 2025A Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease, GM1 Gangliosidosis or GM2 Gangliosidosis

Azafaros A.G. — PHASE3

TrialRECRUITING

May 2025Deep Cervical Lymphaticovenous Anastomosis Surgery for Moderate-to-Advanced Dementia Patients

RenJi Hospital — NA

TrialNOT YET RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Frontotemporal dementia.
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Clinical Trial Landscape

30 active trials

1Phase 1

7N/A

17Unknown

4PHASE1, PHASE2

1EARLY_PHASE1

30Total recruiting

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Recent News & Research

No recent news articles indexed yet for Frontotemporal dementia.
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Specialist Network

Top 6 by expertise

Global Clinical Leader

Daiichi Sankyo

Score 3644 trials4 pubs

Alberto Benussi, MD

Università degli Studi di Brescia

📍 Trieste, Trieste

Score 255 trials

Reinhold Schmidt, Professor

Medizinische Universität Graz

Score 252 trials2 pubs

Forbes D Porter, M.D.

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

📍 Bethesda, Maryland

Score 2114 trials

Mitchell S Cairo, MD, MD

New York Medical College

📍 HAWTHORNE, NY

Score 1512 trials

Jennifer Whitwell, PhD

Mayo Clinic

Score 123 trials

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