Familial dysautonomia Advocacy Hub | UniteRare

At a Glance

Live from database

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4Recruiting trials

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11Specialists

Regulatory Watchboard

4 events

Jan 2025Autonomic Reactivity and Personalized Neurostimulation

Medical College of Wisconsin — NA

TrialRECRUITING

Jul 2024Dexmedetomidine Sublingual Film for the Ambulatory Treatment of Hyperadrenergic Autonomic Crisis in Patients With Familial Dysautonomia

NYU Langone Health — PHASE2

TrialENROLLING BY INVITATION

Jun 2024Pilot Study of Dexmedetomidine Sublingual Film for the Ambulatory Treatment of Hyperadrenergic Autonomic Crisis in Patients With Familial Dysautonomia

NYU Langone Health — PHASE2

TrialACTIVE NOT RECRUITING

Feb 2017The Natural History of Familial Dysautonomia

NYU Langone Health

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Familial dysautonomia.
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Clinical Trial Landscape

4 active trials

2Phase 2

1N/A

1Unknown

4Total recruiting

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Recent News & Research

No recent news articles indexed yet for Familial dysautonomia.
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Specialist Network

Top 6 by expertise

Horacio Kaufmann, MD, M.D

NYU Langone Health

📍 NEW YORK, NY

Score 2710 trials

Alejandra Gonzalez-Duarte, MD

NYU Langone Health

📍 NEW YORK, NY

Score 192 trials1 pub

Lucy J Norcliffe-Kaufmann, PhD

NYU School of Medicine

Score 61 trial

Horacio C Kaufmann, M.D., M.D

NYU Langone Health

📍 NEW YORK, NY

Score 61 trial

Katja Karrento, MD

Medical College of Wisconsin

📍 Milwaukee, Wisconsin

Score 52 trials

Benzi Kluger, MD, MD

University of Rochester

📍 AURORA, CO

Score 51 trial

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