Erythropoietic porphyria Advocacy Hub | UniteRare

At a Glance

Live from database

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1FDA treatments

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27Specialists

Regulatory Watchboard

No FDA or trial events recorded yet for Erythropoietic porphyria.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Erythropoietic porphyria.
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Approved Treatments

1 FDA-approved

SCENESSE

(afamelanotide)Orphan drugstandard

Clinuvel Inc.

FDA label ↗

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Clinical Trial Landscape

No active clinical trials currently recruiting for Erythropoietic porphyria.
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Recent News & Research

No recent news articles indexed yet for Erythropoietic porphyria.
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Specialist Network

Top 6 by expertise

Karl E Anderson, MD

University of Texas

Score 363 trials

Eliane Sardh, MD PhD

Karolinska University Hospital, Stockholm

Score 301 trial

Karl E Anderson

University of Texas

Score 302 trials

Amy K Dickey, MD

Massachusetts General Hospital

Score 91 trial1 pub

Manisha Balwani, MD, M.D., M.S

Icahn School of Medicine at Mount Sinai

📍 NEW YORK, NY

Score 81 trial

Pilar Bilbao

Clinuvel Pharmaceuticals Limited

Score 61 trial

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