Epilepsy syndrome Advocacy Hub | UniteRare

At a Glance

Live from database

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27Recruiting trials

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44Specialists

Regulatory Watchboard

10 events

Dec 2026Accelerated iTBS for Depression and Suicidality

University of Iowa — NA

TrialNOT YET RECRUITING

May 2026Overnight TI in TLE

Duke University — NA

TrialNOT YET RECRUITING

Apr 2026MRI Volumetry and Diffusion Tensor Imaging in Temporal Lobe Epilepsy

Assiut University

TrialNOT YET RECRUITING

Apr 2026A PET-MRI Study of Serotoninergic Brainstem Pathway in Patients With Dravet Syndrome

Hospices Civils de Lyon — NA

TrialNOT YET RECRUITING

Mar 2026COMparison Between Anakinra and Tocilizumab in NORSE - "COMBAT-NORSE"

Yale University — PHASE3

TrialNOT YET RECRUITING

Dec 2025LEvetiracetam to Prevent Seizures in Symptomatic Alzheimer's Disease in Adults With Down Syndrome

Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau — PHASE3

TrialRECRUITING

Aug 2025Ketogenic Diet for Prevention of Epileptic Spasms in Infantile Onset Genetic Epilepsies

Heather Olson — PHASE1

TrialRECRUITING

Jul 2025MRgLITT for mTLE: A PROBE Trial

Beijing Tiantan Hospital — NA

TrialRECRUITING

Jun 2025Coronary and Cerebral Microvascular Dysfunction in Neurological Diseases

University Medicine Greifswald

TrialNOT YET RECRUITING

Jun 2025Registry and Natural History of Epilepsy-Dyskinesia Syndromes

Boston Children's Hospital

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Epilepsy syndrome.
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Clinical Trial Landscape

27 active trials

1Phase 3

1Phase 4

1Phase 2

7N/A

16Unknown

1EARLY_PHASE1

27Total recruiting

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Recent News & Research

No recent news articles indexed yet for Epilepsy syndrome.
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Specialist Network

Top 6 by expertise

Kelly Knupp, MD

University of Colorado, Denver

📍 AKRON, OH

Score 213 trials

Chunhong Shen

Second Affiliated Hospital, School of Medicine, Zhejiang University

Score 152 trials92 pubs

Amit Ray, MD

Harmony Biosciences Management, Inc.

📍 Kissimmee, Florida

Score 132 trials1 pub

Hiroki Takano

Neuroscience Clinical Development Section. JAC PCU. Eisai Co., Ltd.

Score 82 trials17 pubs

François CREMIEUX

Assistance Publique - Hôpitaux de Marseille

Score 510 trials

Marc Kamin, MD, MD

SK Life Science, Inc.

📍 OYSTER BAY, NY

Score 53 trials

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