Advocacy intelligence hub — real-time data for patient organizations
Xinnate AB — PHASE2
CHU de Quebec-Universite Laval — PHASE1, PHASE2
M. Peter Marinkovich — PHASE1, PHASE2
Gang Wu, MD
Peking University Cancer Hospital & Institute
M. Peter Marinkovich — PHASE1, PHASE2
Krystal Biotech, Inc. — PHASE3
Zevaskyn: FDA approved
treatment of wounds in adult and pediatric patients with recessive dystrophic epidermolysis bullosa (RDEB)
Chiesi Farmaceutici S.p.A. — PHASE3
Stanford University — PHASE2
Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
FINANCIAL LANDSCAPE SUMMARY
Total programs
Open now
Copay cards
Travel grants
Copay Assistance2
VYJUVEK
Krystal Biotech
ZEVASKYN
Unknown
Patient Assistance Programs1
Filsuvez
Chiesi USA, Inc.
Travel Grants4
Chiesi Total Care FILSUVEZ Copay Program
Epidermolysis Bullosa Financial Assistance Program
The Assistance Fund
The Assistance Fund: Epidermolysis Bullosa
The Assistance Fund
The Assistance Fund: Epidermolysis Bullosa Financial Assistance Program
Vyjuvek
(VYJUVEK)Orphan drugKrystal Biotech, Inc.
12.1 Mechanism of Action Dystrophic epidermolysis bullosa (DEB) is caused by mutation(s) in the COL7A1 gene, which results in reduced or absent levels...
Zevaskyn
(PRADEMAGENE ZAMIKERACEL)Orphan drugAbeona Therapeutics Inc.
12.1 Mechanism of Action In patients with recessive dystrophic epidermolysis bullosa (RDEB), both copies of the COL7A1 gene are mutated, resulting in ...
Filsuvez
(BIRCH TRITERPENES)Orphan drugstandardChiesi USA, Inc.
12.1 Mechanism of Action The mechanism of action of FILSUVEZ in the treatment of wounds associated with epidermolysis bullosa is unknown.
Matt P Marinkovich, MD, MD
Associate Professor of Dermatology
📍 STANFORD, CA
Alain Hovnanian, Prof
National Institut of health and medical research
Christine Chiaverini, PhD
dermatology department, Nice University Hospital
Su Chan Kim, PhD
Gangnam Severence Hospital
Peter Marinkovich, MD
Stanford University
David Woodley, MD, RN
University of Southern California Department of Dermatology
📍 BUFFALO, NY