DICER1 tumor-predisposition syndrome Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

3 events

Mar 2025Testing a Standardized Approach to Surgery and Chemotherapy for Type I Pleuropulmonary Blastoma or the Addition of an Anti-cancer Drug, Topotecan, to the Usual Treatment for Types II and III Pleuropulmonary Blastoma

Children's Oncology Group — PHASE3

TrialRECRUITING

Feb 2011DICER1-related Pleuropulmonary Blastoma Cancer Predisposition Syndrome: A Natural History Study

National Cancer Institute (NCI)

TrialRECRUITING

Dec 2009International Pleuropulmonary Blastoma (PPB) Treatment and Biology Registry

Children's Hospitals and Clinics of Minnesota — NA

TrialACTIVE NOT RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for DICER1 tumor-predisposition syndrome.
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Clinical Trial Landscape

3 active trials

1Phase 3

1N/A

1Unknown

3Total recruiting

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Recent News & Research

No recent news articles indexed yet for DICER1 tumor-predisposition syndrome.
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Specialist Network

Top 2 by expertise

Douglas R Stewart, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 65 trials

Kim E. Nichols, MD

St. Jude Children's Research Hospital

📍 Memphis, Tennessee

Score 52 trials

View all DICER1 tumor-predisposition syndrome specialists →

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