Cystic fibrosis

Advocacy intelligence hub — real-time data for patient organizations

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At a Glance

Live from database

Live Alerts

PAN Foundation — Cystic fibrosis status changedApply now ↗

Regulatory Watchboard

10 events
Apr 2026Metformin for People With CFRD on CFTR Modulator Therapy to Improve Ion Channel Function

University of Kansas Medical Center — PHASE2

TrialNOT YET RECRUITING
Apr 2026MRI Assessment of Lung Airways in Cystic Fibrosis: Evaluate MRI's Ability to Detect Changes in Airway Structure .

The Hospital for Sick Children

TrialNOT YET RECRUITING
Apr 2026Phase 2 Study to Assess the Safety and Efficacy of ANG003

Anagram Therapeutics, Inc. — PHASE2

TrialNOT YET RECRUITING
Mar 2026TRIKAFTA: New indication approved
FDAcompleted
Mar 2026TRIKAFTA: New indication approved
FDAcompleted
Mar 2026TRIKAFTA: New indication approved
FDAcompleted
Mar 2026SYMDEKO: New indication approved
FDAcompleted
Mar 2026ORKAMBI: New indication approved
FDAcompleted
Mar 2026KALYDECO: New indication approved
FDAcompleted
Mar 2026TRIKAFTA: New indication approved
FDAcompleted

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

21 programs

FINANCIAL LANDSCAPE SUMMARY

21

Total programs

15

Open now

7

Foundation grants

6

Copay cards

8

Travel grants

Foundation Grants7

PAN Foundation — Cystic fibrosis

PAN Foundation

ClosedContact for detailsApply ↗

Good Days — Cystic fibrosis

Good Days

OpenContact for detailsApply ↗

Patient Services Inc — Cystic fibrosis

Patient Services Inc

OpenContact for detailsApply ↗

NORD Patient Assistance — Cystic fibrosis

NORD Patient Assistance

OpenContact for detailsApply ↗

Patient Advocate Foundation — Cystic fibrosis

Patient Advocate Foundation

OpenContact for detailsApply ↗

The Assistance Fund — Cystic fibrosis

The Assistance Fund

OpenContact for detailsApply ↗

HealthWell Foundation — Cystic fibrosis

HealthWell Foundation

OpenContact for detailsApply ↗

Copay Assistance6

Pulmozyme

Genentech

OpenContact for detailsApply ↗

Trikafta

Vertex Pharmaceuticals

OpenContact for detailsApply ↗

Kalydeco

Vertex Pharmaceuticals

OpenContact for detailsApply ↗

ORKAMBI

Vertex

OpenContact for detailsApply ↗

Tobramycin Inhalation Solution Pak

Horizon

OpenContact for detailsApply ↗

SYMDEKO

Vertex

OpenContact for detailsApply ↗

Travel Grants8

BC Cystic Fibrosis Subsidy for Medications and Travel Program

Contact for detailsApply ↗

Boston Children's Hospital Cystic Fibrosis Patient Resources

Contact for detailsApply ↗

Cystic Fibrosis Center Patient Resources

Contact for detailsApply ↗

Cystic Fibrosis Copay Assistance Program - The Assistance Fund

Contact for detailsApply ↗

Gilead Support Path Patient Assistance Program

Gilead Sciences

OpenContact for detailsApply ↗

Kitabis Copay Assistance

OpenContact for detailsApply ↗

The Assistance Fund Cystic Fibrosis Copay Assistance Program

The Assistance Fund

OpenContact for detailsApply ↗

Vanderbilt Specialty Pharmacy Financial Assistance

Vanderbilt Specialty Pharmacy

Contact for detailsApply ↗

View all support programs on disease page →

Approved Treatments

7 FDA-approved

Trikafta

(elexacaftor/tezacaftor/ivacaftor)Orphan drug

Vertex Pharmaceuticals

12.1 Mechanism of Action Elexacaftor and tezacaftor bind to different sites on the CFTR protein and have an additive effect in facilitating the cellul...

Approved Oct 2019FDA label ↗

ALYFTREK

(VANZACAFTOR, TEZACAFTOR, AND DEUTIVACAFTOR)standard

Vertex Pharmaceuticals Incorporated

Cystic Fibrosis Transmembrane Conductance Regulator Potentiator [EPC]

12.1 Mechanism of Action Vanzacaftor and tezacaftor bind to different sites on the CFTR protein and have an additive effect in facilitating the cellul...

FDA label ↗

Kalydeco

(IVACAFTOR)Orphan drug

Vertex Pharmaceuticals Incorporated

FDA label ↗

SYMDEKO

(TEZACAFTOR AND IVACAFTOR)Orphan drug

Vertex Pharmaceuticals Incorporated

FDA label ↗

ORKAMBI

(LUMACAFTOR AND IVACAFTOR)Orphan drug

Vertex Pharmaceuticals Incorporated

FDA label ↗

ALYFTREK

(VANZACAFTOR, TEZACAFTOR, AND DEUTIVACAFTOR)standard

Vertex Pharmaceuticals Incorporated

Cystic Fibrosis Transmembrane Conductance Regulator Potentiator [EPC]

12.1 Mechanism of Action Vanzacaftor and tezacaftor bind to different sites on the CFTR protein and have an additive effect in facilitating the cellul...

FDA label ↗

Acetylcysteine

(ACETYLCYSTEINE)Orphan drugstandard

Hospira, Inc.

FDA label ↗

View full treatment details on disease page →

Clinical Trial Landscape

118 active trials
6Phase 3
5Phase 4
7Phase 2
3Phase 1
49N/A
41Unknown
3PHASE1, PHASE2
3EARLY_PHASE1
1PHASE2, PHASE3
118Total recruiting
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Recent News & Research

6 articles
BREAKINGFDA

FDA Approves ALYFTREK

ALYFTREK (DEUTIVACAFTOR) received FDA approval.

Read ↗
BREAKINGFDA

FDA Approves ORKAMBI

ORKAMBI (IVACAFTOR) received FDA approval.

Read ↗
BREAKINGFDA

FDA Approves KALYDECO

KALYDECO (IVACAFTOR) received FDA approval.

Read ↗
BREAKINGFDA

FDA Approves KALYDECO

KALYDECO (IVACAFTOR) received FDA approval.

Read ↗
BREAKINGFDA

FDA Approves ORKAMBI

ORKAMBI (IVACAFTOR) received FDA approval.

Read ↗
BREAKINGFDA

FDA Approves SYMDEKO (COPACKAGED)

SYMDEKO (COPACKAGED) (IVACAFTOR) received FDA approval.

Read ↗

Browse all Cystic fibrosis news →

Specialist Network

Top 6 by expertise

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