Crouzon syndrome Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

2 events

Aug 2025A Phase II Nationwide, Fully Decentralized, Telemedicine Study of Pemigatinib in Adult Patients With Advanced or Metastatic Pancreatic Cancer With FGFR Genetic Alterations

Sameek Roychowdhury — PHASE2

TrialRECRUITING

Jan 2025A Study of an FGFR2/3 Inhibitor (CGT4859) in Patients With Cholangiocarcinoma and Other Advanced Solid Tumors

Cogent Biosciences, Inc. — PHASE1, PHASE2

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Crouzon syndrome.
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Clinical Trial Landscape

No active clinical trials currently recruiting for Crouzon syndrome.
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Recent News & Research

No recent news articles indexed yet for Crouzon syndrome.
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Specialist Network

Top 6 by expertise

Milind Javle, MD, MD

Roswell Park Cancer Institute

📍 HOUSTON, TX

Score 253 trials

Manuel Häckl, MD

Basilea Pharmaceutica International Ltd, Allschwil

Score 185 trials

Sameek Roychowdhury, MD, PhD, M.D

Ohio State University Comprehensive Cancer Center

📍 COLUMBUS, OH

Score 122 trials

Tanguy Seiwert, M.D

University of Chicago Comprehensive Cancer Center P2C

📍 BALTIMORE, MD

Score 95 trials

Marc Engelhardt, MD, DR

Basilea Pharmaceutica

📍 MANCHESTER, MO

Score 93 trials

Mehmet Akce, MD, M.D

Sponsor-Investigator

📍 BIRMINGHAM, AL

Score 82 trials

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