Cranioectodermal dysplasia Advocacy Hub | UniteRare

At a Glance

Live from database

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5Specialists

Regulatory Watchboard

10 events

Mar 2026Chronic CED of TPT for Recurrent Malignant Glioma

Jeffrey N. Bruce — PHASE1

TrialRECRUITING

Nov 2025The RADIANCE CED Study

ReCor Medical, Inc.

TrialRECRUITING

Nov 2025Propensity-Matched Study of Cardiac Contractility Modulation Therapy in Heart Failure

Impulse Dynamics

TrialRECRUITING

Jul 2025TriClip CED RWE Study

Abbott Medical Devices

TrialRECRUITING

Mar 2025TTVR STRONG Under Coverage With Evidence Development (CED) Study

Edwards Lifesciences

TrialRECRUITING

Mar 2025D2C7-IT + 2141-V11 Combination Post-resection in rGBM

Darell Bigner — PHASE1

TrialRECRUITING

Oct 2024Fertility and Ovarian Reserve in Female Childhood Cancer Survivors

Centre Hospitalier Universitaire de Liege

TrialRECRUITING

May 2024Safety of ENC-201-CED ENCRT

Encellin — PHASE1

TrialACTIVE NOT RECRUITING

Jan 2024Aveir AR Coverage With Evidence Development (CED) Study

Abbott Medical Devices

TrialRECRUITING

Sep 2023D2C7-IT and 2141-V11 in Newly Diagnosed GBM Patients

Darell Bigner — PHASE1, PHASE2

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Cranioectodermal dysplasia.
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Clinical Trial Landscape

No active clinical trials currently recruiting for Cranioectodermal dysplasia.
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Recent News & Research

No recent news articles indexed yet for Cranioectodermal dysplasia.
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Specialist Network

Top 5 by expertise

Annick Desjardins, MD, M.D

Duke Health

📍 DURHAM, NC

Score 127 trials1 pub

Daniel Landi, MD, M.D

Duke University

📍 DURHAM, NC

Score 67 trials

John D Heiss, M.D., M.D

National Institute of Neurological Disorders and Stroke (NINDS)

📍 BETHESDA, MD

Score 56 trials

Annick Desjardins, MD, FRCPC, M.D

Duke Health

📍 DURHAM, NC

Score 314 trials

Nicole Harbert

HonorHealth

📍 Scottsdale, Arizona

Score 05 trials

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