Castleman disease Advocacy Hub | UniteRare

At a Glance

Live from database

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9Recruiting trials

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29Specialists

Regulatory Watchboard

10 events

Dec 2025Ruxolitinib in Previously Treated Idiopathic Multicentric Castleman Disease

University of Pennsylvania — PHASE2

TrialRECRUITING

Mar 2025Phase II Study of Pacritinib in Kaposi Sarcoma Herpesvirus (KSHV)-Associated Multicentric Castleman Disease and KSHV-Associated Inflammatory Cytokine Syndrome (KICS)

National Cancer Institute (NCI) — PHASE2

TrialRECRUITING

Nov 2024Nintedanib Treatment in Unicentric Castleman Disease

Assistance Publique - Hôpitaux de Paris — PHASE2

TrialNOT YET RECRUITING

Jul 2024Daratumumab for Relapsed/Refractory Primary Effusion Lymphoma, Plasmablastic Lymphoma, and Multicentric Castleman Disease

National Cancer Institute (NCI) — PHASE2

TrialRECRUITING

Mar 2023An Italian Multicenter Retrospective Observational Study to Assess Effectiveness and Safety of Siltuximab for Patients with Castleman's Disease Treated in Italy in a Real-life Context

IRCCS Azienda Ospedaliero-Universitaria di Bologna

TrialRECRUITING

Apr 2022A Study of Anti-IL-6R mAb Injection in Patients With iMCD

Beijing VDJBio Co., LTD. — PHASE2

TrialACTIVE NOT RECRUITING

Nov 2021Natural History of KSHV-Associated Multicentric Castleman s Disease

National Cancer Institute (NCI)

TrialRECRUITING

Sep 2021HHV8 and Solid Organ Transplantation

Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico

TrialRECRUITING

Sep 2019Sirolimus in Previously Treated Idiopathic Multicentric Castleman Disease

University of Pennsylvania — PHASE2

TrialACTIVE NOT RECRUITING

Dec 2017Molecular Characterization of Viral-associated Tumors, Tumors Occurring in the Setting of HIV or Other Immune Disorders and Castleman Disease

National Cancer Institute (NCI)

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Castleman disease.
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Clinical Trial Landscape

9 active trials

4Phase 2

1Phase 1

4Unknown

9Total recruiting

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Recent News & Research

No recent news articles indexed yet for Castleman disease.
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Specialist Network

Top 6 by expertise

Robert Yarchoan, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 3213 trials

Ramya M Ramaswami, M.D.

National Cancer Institute (NCI)

📍 Bethesda, Maryland

Score 2310 trials

Joshua Brandstadter, MD, PhD, MSc, M.D., PhD

University of Pennsylvania

📍 PHILADELPHIA, PA

Score 173 trials

Pier Luigi Zinzani, MD

IRCCS Azienda Ospedaliero-Universitaria di Bologna

Score 145 trials

Jian li, M.D.

Peking Union Medical College Hospital

Score 111 trial

Matthew Painschab, MD, MD

University of North Carolina

📍 INDIANAPOLIS, IN

Score 81 trial

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