Birt-Hogg-Dubé syndrome Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

1 event

May 2002Genetic Analysis of Birt Hogg-Dube Syndrome and Characterization of Predisposition to Kidney Cancer

National Cancer Institute (NCI)

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

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FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Birt-Hogg-Dubé syndrome.
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Clinical Trial Landscape

1 active trial

1Unknown

1Total recruiting

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Recent News & Research

1 article

NPJ Genom MedMar 27, 2026

Genotype-based prevalence of Birt-Hogg-Dubé syndrome in the healthcare and genomic registry populations - breaking the 'rare disease' status?

Published in NPJ Genom Med. Broniarek I et al.

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Specialist Network

Top 4 by expertise

Ramaprasad Srinivasan, M.D., M.D

National Cancer Institute (NCI)

📍 BETHESDA, MD

Score 136 trials

Maurice van Steensel, Dr.

Department of Dermatology

Score 61 trial

Nishant Gupta, MD

University of Cincinnati

Score 42 trials

Pieter E. Postmus

The Clatterbridge Cancer Centre

Score 01 trial

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